Coping with travel anxiety

I wrote this post the night before flying and also whilst on the plane, therefore I hope that by writing this as I'm trying to manage my own travel anxiety the tips and advice I have to offer will subsequently be of good use to you too. So sit back, relax and enjoy- don't you just hate it when they say that?!

Copyright: Sian Wootton

I'm lying here writing this waiting, trying to remain calm, trying to ignore that nagging in the pit of my stomach and creeping over my skin. Just trying to keep myself calm ready to travel tomorrow. I have suffered from travel anxiety for a good while now. Getting on a plane fills me with a sense of dread. I was fine for a short while after I started to fly again (I wouldn't do it for a few years) but then one bad patch of turbulence and a panic attack set it right back off again. It's funny because I can sit by the window and look out, especially during take off and landing. It actually fills me with awe every time, seeing the world from above, watching cars move along the roads and when you are above the clouds just looking at such a serene view of fluffy white clouds. 

Fear of flying or travel is incredibley common, however it can stem from so many different root causes. For some it's the fear of not being in control. And I hold my hands up to that one. It's got slightly better as I've had to relinquish a lot of control to my illness and being used to not having the last say but prior to that I very much liked to be in control. A lot of people will tell you at this point that it's much safer than driving a car, however to the person that likes being in control, if they are driving they have the control, the decisions are on them and they can see what's going on. Now I for one would not like to pilot a plane but getting on a plane the fact you can't see where you are going can be a big deal. Especially during turbulence, you can't see those bumps in the air, like you would a pot hole and try to avoid it. But we do have to trust that these pilots are highly experienced and will do their upmost to make your flight as comfortable as possible. And apparently turbulence is perfectly safe.

For others the biggest fear is claustrophobia or fear of heights. Or it is as all consuming as being scared something bad will happen. I know a lot of people think about what they would leave behind should something happen. Getting on a plane confronts us with our fears yet many of us try to cope and deal with them the best that we can in order to enjoy seeing the world and go on holiday. We see it as a necessary evil. Although some simply don't put themselves in that position, and forgo flying all together. In all honesty I can't say I blame them, it's something I've thought about many times. Indeed I did for a while. However in order to begin to face our fears and try to find a way to cope it can be worthwhile to pinpoint exactly where your fear stems from. Get to the root cause of the issue.

Personally as well as having that need to be in control I think it has to do with long standing travel sickness issue. Many a car ride has made me green around the gills and I've never been able to cope with a fairground ride wilder than the carousel. So when I know I have to get on a plane I instinctively think this is going to make me unwell. As someone that is chronically ill and ill enough, feeling more sick makes me nervous. I hate vomit. Being physically sick scares me. I can't even stand listening to someone wretching, it gives me cold sweats. I won't even start on my 14 year battle with IBS. Again leading me down that 'I don't have control' route. And what's worse than when you feel like you're not in control if your bodily functions? Sorry TMI.

This is why when I fly I like to be extra prepared and know that I have everything I need to help me cope should I begin to panic. So below I will list a few of the things I do and the items I pack in my hand luggage that help me to at least attempt to be calm.

* Book a flight time that suits you. I like to fly early so that it's over with and I don't spend most of the day getting more and more worked up. Where as if I fly early I get up and go (not that I have much of that.) Also I've heard that flying early is when the air has less disruptions so you will hopefully experience less turbulence.

* Pick your seat carefully- Of course the main question is aisle or window? But also think carefully about where on the plane you would prefer to sit. If you can book a seat in the middle of the plane as this is the centre of gravity of the plane and by sitting by the wing it is the most balanced part of the plane, so you feel less bumps. Or if you are claustrophobic opt for a seat with extra leg room.

* I find guided meditation, mindfulness excercises and relaxing music really helpful. It's good to zone into and tune out of the panic of your current surroundings. If you know this works for you be sure to download them onto your mobile or ipod for use throughout your journey. By downloading them onto a phone or any handheld device it also means you can listen to them throughout take off and landing if you find those parts the most stressful.

* If you have never tried guided meditation, mindfulness or relaxing music, why not give it a try a few weeks before you fly. See if it helps you to feel calmer and zone out. Find one that works for you. Make sure that with any guided meditation or mindfulness that you find the person's voice soothing. There are some that might grate on you and that's not want you want when you are trying to remain calm. Also some soothing music you might find irritating. The sound of a waterfall might not be what you want to hear when you're confined to a plane seat. And some white noise sounds sound too much like rushes of air, again the last thing you want to hear. So experiment with what is good for you.

* I really recommend checking that you can listen to your playlist or any apps you have downloaded in aeroplane mode. I thought I could as I pay for spotify to listen offline for the very purpose of travelling. Yet here I am sat on the plane (Hi from just above Dubrovnik) and it won't let me play it. So test it out. I think the issue I was logged into Spotify through Facebook, which of course requires being online, not through spotify.

* Another option you may like to try to help you zone out is an audio book. I've recently been testing Audible to see how I got on with it. Apart from it being a bit wierd at first having someone else read a story in your head and it not being your own voice, and also falling asleep and missing half the story I thought it would be a great idea to help me manage during the flight. And I have to say here I am up in the air (Hi from somewhere over the Ionian sea) and I've found it really useful. Download a book that will keep you entertained, engaged but that doesn't have too complicated a plot that should you panic you can't follow the story. As well as any other aircraft noise.  I recommend listening to a sample before you purchase, as again you may not like the voice of the narrator. Having a voice like Mummy Pig from Peppa Pig is a bit wierd to be honest.

* Pack a grab bag. This is one of the most important things I pack. As well as my main hand luggage I pack a smaller clutch bag to have by my side or in the pocket in front of your seat, if there is one. I've learnt that when I start to panic the last thing I need is to be reaching down, trying to grab my bag and find things just makes me panic even more. As well as makes me feel dizzier. However if I have them by my side and easily accessible, I can reach for them as soon as I need them without the faff. Even the thought of knowing it's there is reassuring. So what do I pack in my grab bag?

Copyright: Sian Wootton

1. Face wipes- I use these to help cool me down. When I start to panic I start to feel really hot, especially my face so having these is great to dab at my face like an Victorian woman having an attack of the nerves. 

2. Medication- In particular the tablets I need for the duration of the flight. Put any medication you might need throughout the flight in a little pot or dispenser so that it's easily accessible. That's what the little macaron you can see in the photo is. You may need your regular medication or have pain killers, anti sickness or anti anxiety meds handy just in case.

3. Lavendar roller ball- Although this has to be added after security with it being a liquid. I like to put a little bit of this on the inside of my wrists and inhale if I need to relax. If I get a headache or sore sinuses during the flight, which can easily happen due to the change in air pressure I roll some over my forehead and behind my ears.

4. Sweets and mints- A must for helping your ears cope during take off and landing. Mints can also be good for if you are feeling a bit nauseous. You may also want to try ginger drops.

5. Head phones- For listening to anything you've downloaded to help you relax or keep you entertained. Choose ones that are comfortable. I had inner ear ones as I found the new ones that came with my S6 really comfy, however after 2 hours my ears were quite sore. I think the pressure in my ears meant they became more uncomfortable. If you really want to drown out any other noises, especially if they freak you out, opt for noise cancelling ones. They might be expensive but worth it for the peace. Try to get ones that don't press on your ears but envelop them comfortably.

6. Phone- Simple really, for all your entertainment, relaxation and obligatory plane wing shots.

7. Travel bands- These aren't in my bag long as I put them on as soon as I'm in my seat. I use these to help me manage my travel sickness. Whether they're a placebo or not they have certainly helped me over the years. I even pop them on at home on days where I feel really nauseous.

If you feel travel sick looking out at the horizon can help you feel more balanced. Wearing sunglasses can also be helpful as when you stop looking out the window you can feel a bit dizzy from the change in the light. It's bright above them there clouds. Don't do anything that involves having your head down, like reading, as this will cause you too feel more nauseous. If you feel panicky or nauseous during turbulence don't look at the wings, watching them bounce will only increase your panic. Shut the window blind and focus straight ahead.

The day before lay out anything you will need for the day of travelling. Such as the outfit you plan to wear and toiletries you will need to use. Plus anything you will need to pack at the last minute.

Create a list of the items you need to pack last minute as well as anything else you need to do before you leave. For example lock all doors and windows, and checking one last time if you have your passport. Tick them off your list as you do them for that extra bit of peace of mind. Trying to remember if you have locked the front door because you were in such a flurry will cause more anxiety.

Before you leave check the live departure boards online to see whether your flight is on time. If there is a delay ring your airline for advise.

Be organized about how you are getting to the airport. Prebook a taxi etc. Don't wait until the day. The less stress surrounding the journey there the better. So opt for what works best for you. Would you rather the distraction of driving or would that cause more stress? Remember to check traffic conditions before you set off so that you can be prepared for them.

Finally I'm going to suggest some YouTube videos that are good for helping put your mind at ease before flying.

Watch "Fear of flying help video by Virgin Flying Without Fear on YouTube  https://youtu.be/ayXvS5b9jVE

Watch "Air Turbulence Tips" on YouTube https://youtu.be/7Gao3SIT3IY

Watch "Working Through Travel Anxiety // My Experience +…" on YouTube https://youtu.be/sgGMN8f6Hs4

I hope that you have found some of these tips useful and they help you to cope with your next flight. Please share your tips too, as I would love to know what helps you.

Sian x

  

Travelling with children

 

Following on from my last travel post, which was an interview with my friend Ali about travelling with her husband and daughter, which you can read here, where she shares some fab tips; I thought I'd do a post with some extra tips and advice I've picked up whilst researching for this series about travelling with children. 

Firstly I wanted to share this youtube video from Louise from SprinkleofGlitter. On it she shares her tips for travelling with children, along with some ideas on keeping them entertained on the plane. I thought this might come in handy for any of you that have children and be a great addition to my travel series. It's certainly worth a watch.

https://www.youtube.com/watch?v=H8RIgqhuZEY&featurhttp:/=youtube_gdata_player

 

Some other tips and tricks I've come across are;

 

Remember too that children get the same baggage allowance as adults so make the most of it. When it comes to packing for your children forget the less is more rule and go with the ' I need to keep them entertained and behaving' rule.

 

 

 

If you are travelling with a baby or toddler then bottles, or beakers of milk, water or juice are allowed to be carried in your hand luggage. Just be sure to tell the security officer as you are putting your hand luggage into the trays for screening. They may also be checked with a litmus paper test.

When it comes to snacks and meals. Firstly take a look at your airlines website to see what is included with your flight or available to purchase. If you are travelling short haul or wish to save yourselves the extortionate onboard prices then eating at the airport or purchasing food to eat on the plane atthe departure lounge is a good idea. You can take a look at what restaurants and shops are available on the airports website. The gateguru app also has this information for some airports. You can even bring food from home, just check that it is allowed. I know some airlines might be getting tougher on nuts due to the contained atmosphere and nut allergy risks. 

I would also recommend packing some straws for older children if they have a drink on the plane that doesn't have a sports bottle top so there is no spillages.

 

Planes aren't really the cleanest of places so packing antibacterial wipes and hand gel can come in handy. Also pack extra dummies should one get dropped. You can also buy portable disinfectant pots for dummies. And plenty of baby wipes to keep your own childs hands and faces clean.

If you are travelling with a baby take a look on the airlines website to see if they have cots available. Airlines that do will usually have this facility by an extra leg room space, like at the front of each class section. I would also check whether you are only entitled to one space in that row of seats, which is often the case. So you may want to prebook another seat(s) on that row to all be together. As well as the benefit of having extra leg room, there is also the advantage of being able to put down a blanket and creating a small play area for baby. Thank you Pinterest for that nugget of information.

The problem here is other passengers, but being polite and asking first will win you brownie points I'm sure. Remember the point I made above that it is likely you will only automatically be allocated one seat with the cot facility. The others can be selected by any other passengers. And they're popular, because of course there is the extra leg room. If you want to be guaranteed those extra seats in that row pre-book them. FAST. And be nice to the people sharing that space with you.

Just another note on seating your child. Children under 2 are permitted to sit on an adults lap, therefore saving you the cost of a seat. However I have read a few posts stating that often it is best to get them their own seat, that way both you and your child are much comfier. For take off and landing they will have to be seated on your lap however. If you do decide to get them their own seat, you can then fit a car seat in if needed. That way you are not stuck with a wriggly baby on your lap for the duration of the flight. And they will sleep better. However, there seems to be a lot of confusion surrounding taking car seats on to the plane. Obviously there are different regulations for each airline but I have read that there seems to be confusion between check in staff, ground staff and cabin staff having different opinions. I recommend reading the following blog explaining the issue a bit more. I can't say I have ever seen anyone take one. So I would say to double check with your airline and print off any information from their website so that you can show them that that is what their company states.

Another advantage for using a car seat is of course if you are planning to hire a car abroad. That way you know it's safe and you don't have to pay to hire one.

As for buggies/push chairs you can keep these with you until you go onto the plane. Make sure that they get labelled at check in. Then when you get to the plane hand over your buggy to ground staff who will put them into the hold. When you arrive at your destination buggies will come out of the hold first and will be waiting for you to collect by the plane. That is if you checked them with ground staff and not with the rest of your luggage at check in, in which case they will be put on the carousel.

In this day and age of technology make use of tablets, ipads, phones etc to help keep older children entertained. Load it with games, films or tv shows before you go and remember to turn any electronic devises to airplane mode before you get on the plane. This is particularly useful for shorter haul flights.

 If you only have one devise but more than one of you want to listen to something then get yourselves a headphone splitter, which allows you to plug more head/earphones into the device. Before you travel maybe download your child/children's favourite film or tv programmes or perhaps a new film that they haven't seen. This might be a good idea if you are travelling with more than one child. Or before you travel ask your children to agree on a film/ tv programmes they will all enjoy. If however you are not all seated together maybe work out a timescale for each child to have the device/s for. This could also work if you have different devices. Either way set the boundaries before travelling and involve them as much as possible (obviously depending on age etc.)

On longer haul flights entertainment is provided in the form of tv screens on the back of the seat in front of you. And includes a range of films, tv shows and games. You can usually check on the airlines website what films etc are showing. If there's nothing on there that will interest your child then take back ups. Also remember to pack head/earphones to be able to listen to them.

The following link is some tips on how to  negotiate whilst at your destination for parents/guardians of teens.

 

 

Sian

Travel interview with Ali

 Today's post is another interview with one of my spoonie friends, the very lovely Alison, who travelled with her husband and little girl to Palma Nova in Mallorca. I think it's great to get as many perspectives as possible of travelling with a chronic illness and this interview has the added perspective of travelling with a child too.

 

Name: Alison 
Illness: M.E
Destination: Palma Nova, Majorca

Who did you travel with? My husband and my little girl
What airline did you use?
 Jet2.com. We also booked the holiday through them

 

First of all, how was your holiday?
Really nice, the sun always helps my symptoms and it was our 3rd time at the same hotel so I knew everything would be good re accessibility etc.  Was nice spending time with my daughter doing things like finding shells on the beach or being in the pool with her.

 

What was your biggest worry before travelling? And how did you overcome it/ justify it?
I was panicking about how much the travelling was going to wipe me out. I had to try to tell myself it would be worth it & had some tips from friends about how to stay calm!

 

Did you notice any changes in your health whilst away? Good or bad? Any new symptoms?
I always find the sun helps with my pain a bit but then, despite hiring a mobility scooter, I walk about more than I should be doing so end up suffering afterwards.  I always tend to sleep better on holiday which may be down to the sun plus doing too much!!

 

 

How was Palma Nova as a resort/ destination in relation to your illnesses/disability? (Access, flat, close to restaurants etc, quiet)
It's a really good resort for wheelchair or mobility scooter users. There are many places to hire disability aids from & it is very flat. The only problem I found was that there were no flat kerbs in some places on either side of road so if you wanted to cross you could get down onto the road but not over again on the other side! Had to try to remember where the sections were that did have flat kerbs on both sides! Otherwise would have to drive on the road which with how they drive over there I didn't fancy!The beach is good as it has a wooden platform with a covered area which you can drive straight onto & leave scooter on (in my case).

 

How did you find attitudes/perceptions towards you by other travellers and from the locals?
Really good mainly. As I am young I am used to getting looks from people when I am in wheelchair or scooter but didn't notice it too much.  People were helpful regarding opening doors & passing me stuff etc if I was on my own.

 

From your experience(s) what piece(s) of advice would you pass on to other spoonie travellers?
Always use special assistance at the airport if travelling by plane.  Makes such a huge difference & makes travelling not seem as daunting or scary.  Also make sure you find out as much as you can about the resort/accommodation & how accessible it is if you use walking/disability aids.

 

What items would you not travel without?
Painkillers!! Heatpads, which I used on my back during journey to help with the pain.  Ear plugs to block out excess noise & eye mask for light sensitivity or for when need rest.

 

What are your favourite holiday beauty products?
Not sure if classed as a beauty product as it's more a necessity but I love Malibu suncream, the smell is yummy! I use anti shine face sheets from e.l.f on an evening, I have to take a few lipsticks & eyeliner, anti frizz hair serum to try to tame the huge holiday hair, I always take some Elizabeth Arden 8 hour cream & will never be without nail polish remover pads & a few polishes!

 

If you were to go on holiday again what would you do differently?
Not panic as much about the travelling as it wasn't anywhere near as bad as I expected!

 

How are you after the holiday?
It took it out of me for a while after getting back.  We had a late flight home plus a horrible experience when the plane was about to land & the landing was aborted due to the weather so that really freaked me out & probably flared my symptoms too.

 

Do you think that despite all the extra 'hassles' of travelling as a chronically ill person it is still worth it?
100%. I would definitely rather have a holiday than not.

 

What are the biggest stresses when it comes to travelling with children when you're chronically ill?
 For me, keeping them safe & making sure they stay with you whilst at airport.  I have always travelled with special assistance so she either walks with us or sits with me on wheelchair. Thinking about all the stuff they will want to do while you're away & knowing you won't be able to is a bit stressful but is more upsetting!

 

Do you have any tips or methods of getting your child more involved with packing etc?
She tried outfits on before we went so she knew what we would be taking & she would be wearing whilst there. She helped fold stuff up & put in case! But other than that, not really. I always pack as much in advance as possible.

 

What are your top tips for keeping them entertained on the journey?
Buy them a kids magazine, they usually come with a gift of some sort & have various puzzles games & stories in.  Colouring pads/pens. I got her a colour your own pencil case in which kept her occupied for ages. And snacks/sweets!

 

 

How do you balance keeping your child entertained and having a good time but also making sure you get the rest you need? Is this something you feel is important to consider when choosing a hotel/ resort?

Make sure you have someone else with you who can do stuff with them!!! ...Our hotel had a children's club which she joined in with a few times but she was quite happy going in the kids pool & we could be at the side to keep an eye on her if didn't want to be in the water.  She was also happy on the beach making sandcastles so I could sit next to her & chill while she did it.  She is 5 so it was much easier than in previous years as she never stayed still! I would preferably opt for a hotel with entertainment so they can join in with kids club in day then disco & games at night rather than try to find things to do with them outside of accommodation.

 

Did you have to make any special arrangements for transfer from the airport to the hotel because you were in a wheelchair? Or did you, or have you ever, encounter any problems about this?
No transfer was (& has been on previous holidays) included in holiday package & they take us on a coach so always room for wheelchair in with the baggage.  If we booked separate flights & ,accommodation though we would have to arrange own transfer.

 

Thank you to Ali for taking part and offering up some insight into what it's like to travel with a child in tow. Although her little girl is angel and very well behaved. You can read more about Ali and how she manages motherhood with a chronic illness over on her blog beingamummywithme.blogspot.com

Travel toiletries update

Just a little update on some travel toiletries that I wanted to share with you all. At the weekend I went shopping (woo! Round of applause for that!) and found a cute new toiletries bag, one that I can hang on the back of doors etc. If you only have a small bathroom with limited shelf space or say you are on a cruise or a caravan then these can be a great solution. This one is also waterproof which can be useful. They're so great as you can separate your things into different compartments. The only thing I would say is that if you're going somewhere hot then don't keep your make up in it as the extra steam from the shower could cause your make up to melt. If you have a fridge in your room then hog it with your make up.

 

It also came with a floral drawstring bag too. That will be great for extra storage or for putting a travel hair dryer in. Or even as a small laundry bag for a weekend trip. I plan to use it as my essentials bag for the plane, to put all the things I'm likely to need within the first half an hour of the flight in. I think it will be good for that as it can be hung up too. I got this from Forever 21. They also have them on their website at www.forever21.com 

Whilst there I also picked up this make up bag. Also available on their website, as well as a black version. I got this as I thought the selection of brushes was good. Usually with a travel set you only get 5, but because these are double ended you get a wider selection. And the make up bag itself also has a clear panel so you can use it in your hand luggage if you want.

In my original post I was also looking for a bb cream to use on holiday, to help protect my skin in the sun but offer me good coverage. After asking for advice on instagram and searching Pinterest I got a few recommendations and off I popped to Boots to try some out. It was in the evening so not all the counters were manned but there was a lady on the Smashbox counter and as it was one  that was recommended I asked for some help. This Camera Ready BB cream has a high level of sunscreen at factor 35 and it also offers good coverage. And as it says it preps your skin for those ample photo opportunities on holiday, by priming the skin and evening up your skin tone while covering up any blemishes. It's really light too. I can't wait to use it on holiday. I used it one day last week on a crazily muggy day and despite my face dripping from the heat it still offered good coverage. I found it better than a foundation in this hot weather as my skin could breathe more. They also have a CC cream in am spf 30 if you want to even up your skin tone, which actually might be good if your face gets a funny tan.

I have been meaning to get to Superdrug for a while to stock up on some travel toiletries, many of which I mentioned in my original post but just haven't got there. However, they do have free delivery when you spend more than £10 online, which I thought was great and consequently took advantage of. As you can see I got the mini Nivea suncream lotion, protective lip balm, Simple moisturizing face wash and some Palmers Cocoa Butter as I mentioned in the post. I also got a tea tree exfoliating cream, tea tree is great for calming your skin and regular exfoliating on holiday can help develop that tan. I also got a raspberry and strawberry shower gel as I thought it would smell divine, probably not mixed with the tea tree though, so it may get used on other occasions. Superdrugs own mini shower gels come in great sized bottles. I find some of the others like Dove or Nivea too tiny for longer holidays. I also got some scalp protection spray by Malibu. Malibu is just the smell of holidays. I got this as the tops of our heads are so vulnerable to sun burn. Although I plan on wearing a hat most the time in the sun but it's good to have that added protection and because the suns rays can still get you. It's only a factor 15 though, so I will be using it fairly regularly.

I can't believe I didn't mention Soap and Glory in my original post. I love these but I don't actually have many products. Probably as I don't go into Boots that often (sometimes that shop overwhelms me.) They always have great gift sets around Christmas so they are great presents. I love the body butter and hand food.

In this muggy weather and because my tablets make me really thirsty, I've been trying to keep myself well hydrated. Which can sometimes be funny when your legs aren't working properly. But I think this will help prepare my body and skin for my holiday too. We've resorted to using a jug so I have enough and am not constantly asking for a drink but actually it's a good way to keep track of how much you are drinking. I've been using some rehydration tablets too to help with heat induced cramping and just being a complete sweaty Betty and I find they help. I will be taking a pack on holiday with me. My packing list is getting very long!

Another thing I'll quickly mention on this topic and is getting a well deserved spot in my suitcase is a filtered water bottle. I spoke a bit about them in my packing post, but basically they are a re-useable water bottle that has a filter in the neck. This means that you can drink the tap water and all the impurities that you might have been worried about get filtered away. Saving you a small fortune on buying bottles of water and giving you a few more pennies to spend on ice cream or bracelets.

On the weekend I'm also hoping to go to the spa for Body Silk Glistener treatment. This is a full body exfoliation and moiturising treatment to help get your skin all scrubbed and fresh and ready for the sun. So I'm looking forward to that. 

How do you like to prep your skin for holidays?  Let me know in the comments.

Sian

Spoonie Travel Interview with Sophie

As part of my travel series I wanted to interview some other chronically ill people that know about their experiences of travelling to give you all as much information as possible as well as ideas where is good to go. Today is the turn of my good friend Sophie, who earlier in the year went on her honeymoon. 

Name: Sophie

Illness: Severe M.E and spinal damage

Destination: Lisbon, Portugal

Who did you travel with? My husband

What airline did you use? EasyJet

 

 

First of all, how was your holiday? It was lovely, it was our honeymoon and was very much worth the 9 month wait! 

What was your biggest worry before travelling? And how did you overcome it/ justify it? Flying is always my biggest worry with travelling, not only because of the standing around at airports, and business, but because I hate flying. My fears of the airport itself where overcome when suggested to me (by your lovely self), that I book assistance. The assistance staff were all very helpful and even took care of me when I had a panic attack about the actual flight and my husband wasn't near me. 



Did you notice any changes in your health whilst away? Good or bad? Any new symptoms? I was able to walk a bit more than I can at home, I think the warm weather helped in that regard, although I did over do it. It is a very hilly city, and in my stubbornness decided I could climb them. I didn't notice the effects of this until I got back to England though, I was enjoying my honeymoon too much to notice!



How was.... as a resort/ destination in relation to your illnesses/disability? (Access, flat, close to restaurants etc, quiet) 

Lisbon is a lovely city, but it isn't easily accessible, it is built on 7 hills of varying height and the streets are narrow and paved with a marble-like cobble effect which makes them slippery. 

Some of the things we went to see were accessible, the Oceanarium and Zoo, for example. But other's weren't so easy like the Estadio De Luz which was out of the way and took a lot of walking to. The Castle wasn't easily accessible by foot either, but there was a bus that went up to the ticket office. 

We didn't stay in a hotel instead we found a lovely apartment from Air BnB to stay in, and although it was in one of the small streets it was quiet and in the centre of everything. 

The open top tour buses were fully accessible with wheelchair spaces and friendly staff - we used the City Sightseeing company, but there were 3 other companies who all looked as accessible. This was a brilliant way to see the city without doing too much walking. 

  

How did you find attitudes/perceptions towards you by other travellers and from the locals?

 

When we were out I had my fold up stick rather than my bright pink crutches. Simply because my crutches were just getting in my way around the streets, and it was easier to not use them. So people didn't really notice there was anything wrong with me, just that I walked slowly and stopped a lot!

From your experience(s) what piece(s) of advice would you pass on to other spoonie travellers? 

Make sure you check your destination is accessible. We didn't when we booked it as I wasn't very ill, but 2 weeks before I had a knock back and my husband was close to cancelling the trip after I looked to see how easy Lisbon was to get around in a wheelchair.



What items would you not travel without?

My fold up stick. When the streets were too difficult to use my crutches, my switch stick was my lifesaver. 

What are your favourite holiday beauty products?

My GHDs. I never go to stay anywhere without them! 

 

 

If you were to go on holiday again what would y do differently?

Next time we will make sure our destination is accessible, I will have no choice but to use my wheelchair on our next holiday and we have learnt from our mistake! 

How are you after the holiday?

I was a wreck when we got back and have taken a long time to recover, but I was so ill when we went that I think not going wouldn't have made much of a difference to how I am now.

Do you thin that despite all the extra 'hassles' of travelling as a chronically ill person it is still worth it?

Definitely, we might have to do it differently to other people, but just because we are ill doesn't mean we should miss out on holidays!

 

I hope you have enjoyed this interview, if you want to read some more from Sophie, take a read of her blog nonsensefrommysofa.wordpress.com

Sian x

Packing tips

Such pretty cases; photo source Pinterest

It's finally time to get packing those bags to go away. I wish! Firstly, the golden rule if you have a chronic illness, as highlighted in my pre-packing/ planning post is to leave the week before you go away as free as possible for resting. This is also a useful tip for anyone wanting to take away some of that pre-holiday stress, you know that feeling when you're so stressed with so much to do that you need a holiday?

Again for anyone with a chronic illness get as much help packing as possible. You can supervise with your list and with all the preperation you have done. 

For clothes that are more likely to crease put them all together at the end of the rack in your watdrobe, to put into your case the day before going away.

Again, always work from a list, so not to forget anything. Below I have put two photos of comprehensive lists of the types of things you need. You can print copies of these and view larger versions by opening the links from my pinterest. You can use these as a starting point and then write a more specific one, 'blue floral print dress' for example. Descriptions are great if you are not able to sort through your own things and getting help with packing.  

photo source Pinterest

Photo source Pinterest

Know your baggage allowance and any sizing restrictions and adhere to them, those fines are hefty. Always weigh your bags at home before you go.

I have been looking up some packing tips on Pinterest too. Some of my favourites are 22 Easy Tricks To Make Packing So Much Better, some seem a bit extreme but others look genius, one of which being to use a foldable wardrobe storage, like you would use for camping to pack foldable clothes that you can then put straight into the wardrobe in your room. Another favourite was from twotwentyone, that has some useful tips for packing jewellery and keeping things organized.

Other tips are to always put the heaviest items at the bottom of your case

I'm sure many of you have heard that rolling your clothes is better and more economical with space, rather than folding. However I read a great tip about folding on the way there and rolling on the way back to know you have room for any purchases.

Wear your heaviest items to travel in, trainers for example or carry your coat.

Put the items that you are likely to need first at the top of your case. A change of clothes etc. Often for those with a chronic illness that is pyjamas, to rest after travelling.

I also pre-pack my beach/pool bag, with towel, sunglasses, sun cream, flip flops etc, so that I am not having to pull everthing out to find things. I can simply grab that bag and get soaking up those rays.

I saw a great tip on Pinterest and have included a photo of below, it applied to travelling with children but I think it could work for adults too. It was to create and bundle together an outfit for each day, so for example t-shirt, shorts, socks, underwear, hair accessories then place each bundle in a zip loc or vacuum bag and label with a day for each day that you will be away. Then do another bag for swimwear and pyjamas and some extra clothing just in case. If they are creasable then take each outfit out of the bag the night before and spray lightly with a water spray and hang up. I think this could work well for many people. As for children it promotes responsibility and helps them get dressed by themselves.

A great thing to pack is a refillable water bottle with a filter, such as this one on Amazon. They may be expenisve initially but think of the money you will save on buying bottled water, whether you're abroad or on a cruise. Also lessens the rush to get to the shops and allows you to refill at the airport without purchasing another bottle.

If the bathroom is small in your accommodation or does not have much shelf space use an over the door washbag or one of those shoe holders (as seen inn photo beleow) to store your toiletries. This is great for cruises or caravan holidays.

As well as luggage tags, which could easily rip off put a piece of paper with your home address and holiday address on, on top of all your items inside your case, making it easier to be sent to you should it go missing.

This isn't a packing tip as such but could come in handy for anyone travelling with young children. If your accommodation only has a shower, consider buying an inflatable paddling pool or boat to be used as a bath. Guess that could be used for spoonies too. Remember you can tranport 2 pieces of medical equipment with you, free of charge, so one of these could be a shower stool or wheelchair.

Check out my post on special assistance and medication for more information on travelling with medical equipment. 

Do check out Pinterest packing tips for lots more tricks and nifty ideas.

Anymore packing tips then please leave a comment. Remember to pace as much as possible and get help where possible too. You may notice I've not mentioned hand luggage, well fear not that is coming up next. I thought it deserved a post of it's own seen as it would be carrying the majority of your spoonie and travel survival toolkit.

Sian

Some useful tips for travelling with a chronic illness: medication

We all know that when you have a chronic illness medication becomes a big part of our lives. In truth it's probably my method of telling the time. You get through the day by going from one lot of medication to the next. So when you go on holiday guess what is going to end up taking most of your baggage allowance? Like a travelling pharmacy.

So here are some tips to help plan all things medication for your holiday:

1) A few weeks before start working out how many tablets/ medicine you will need to take with you. Or ask someone to help with this.

2) Make sure you order enough medication to last you for the holiday and around a week or so afterwards (incase you are struggling after the holiday) from the chemists.

3) Always factor in taking a few days worth more, just to be precautious of any delays and not having enough medication. Better safe than sorry.

4) The same applies for pain killers. Take the maximum daily dosage that you are allowed with you (even if you don't take that many currently), again factoring in a couple of days extra. Note that due to the change in routine and travelling you may initially experience more pain, so it's always best to be prepared.

5) Make sure that you carry a printed copy of your list of medication, a repeat prescription for example, with your name on and keep with your medication. For some countries you may also need a doctors letter. This is so that they can be identified at security. It could also be useful should you need medication or medical attention whilst on holiday. Having the list could be beneficial especially in a foreign country and you are in no state to be listing your medication should you need medical attention.       

6) In the same vain some would say that you need to keep your medication in their labelled boxes. However that could potentially take up most of your baggage allowance. I have read that if you go over your hand luggage allowance due to medication then you will not be charged as long as you have documentation. Check with your airline. Try to put as many as you can in each box to save room and keep tablets in their blister packs to be identified. Loose tablets will need to be tested more stringently 

7) For liquid medications again check with your airline for their policies. They will often be tested at security too. Again a prescription or a letter from your doctor is needed.

8) For syringe based medication, insulin, epi pens etc make sure again they are clearly labelled and inform staff about them and show your prescription/ doctors note. If you need to dispose of any syringes onboard ask a member of the cabin crew for the sharps box.

9) If you have medication that needs to be kept in a fridge discuss this with your airlines special assistance team ( see special assistance post for contact details). Many airlines cannot store medication in an oboard fridge but will sometimes fill a cool bag (provided by you) with ice to keep it cool. Discuss this also with your pharmacist. This advice is from British Airways page.

10) If you need to use onboard oxygen this can be arranged with special assistance. Airlines cannot carry oxygen cylinders in the hold or cabin but can transport personal oxygen concentrators. 

11) For any medical equipment discuss this with a member of the special assistance team. Ask whether it counts as part of your luggage allowance or not.   You can use personal oxygen concentrators, cpap machines and personal dialysis machines onboard. Generally they will need to be switched off for take off and landing. Also ensure they can run off a battery as any powerpoints on board may not be sufficient.

12) In order to be considered fit to fly unaccompanied you must be able to administer your own medication. You can learn more about the fit to fly regulations on the airlines website.

13) It is reccommended that you keep your medication in your hand luggage just incase of delays or your bags going missing. Insulin must always be kept in hand luggage as it will freeze in the hold.

14) Additional medication- Consider packing other tablets that may be useful whilst you're away. A good insect repellent is always useful, the stronger the better and bite cream. An antihistamine such as piriton. Immodium and rehydration sachets should you get deli belly. Suncream of course (although not strictly medication)   I would advise using a higher than usual factor due to extra sensitivities and because we do not get as much sunlight being stuck in bed. And some aftersun just in case you do burn. Sudocream is also great or witch hazel gel. Or athletes foot cream is a good trick to use to take away any burning. Not that you want to burn as it could make you more ill. I alsoreccommend some throat lozenges. The day after flying I always get terrible sore throats from the filtered air on the plane.

16) Some medications may be illegal in the country you are travelling to and therefore you may have difficulty getting them into the country. Research may need to be done on some medications and you may need to discuss this with your doctor and pharmacist. You can check on the countries embassy website. Countries such as the United Arab Emirates are very strict and ban the import of some prescriptive drugs other than by hospitals. This can include codeine, cold and flu remedies such as tixylix and those containing sudoephadrine, tramadol, diazapam and prozac. I found a link (it is by US Embassy for the UAE) with a list of banned medications in the UAE. I will put it in my useful links page as again my phone is being annoying. Tripadvisor also has useful forums on this topic. Before booking it would be best to check this and maybe decide on a different location. Also remember that you may be travelling through a country as part of a stop over to another, Australia for example. Australia also require you to declare any medication before hand. 

So there you have it! My tips and advice for taking your medication away with you. (Sorry this bit is in bold too, editing on my phone and it won't let me switch back).  Remember if in doubt always check with the airline, better to be safe than sorry. Especially with something as important as medication. 

Anymore tips are gratefully recieved. The next post in this travel series is all about Packing, so stay tuned.

Sian x