5 things I've learned in 5 years of chronic illness

So last week marked 5 years since my world changed beyond recognition. But rather than crawl up into a ball and blub about it I have decided to try focus on the positives. Because believe it or not there are still positives. I have learned so many lessons in these past 5 years, and got to know so much more about myself as I've faced these challenges. I'm sure I could make a much longer list of things I've learned throughout this experience but these are the ones that I thought of instantly. And in all honestly my cognitive functioning is pretty foggy lately, so I'm lucky I've been able to write a post at all. Anyway here are the 5 lessons I've learned from being chronically ill for 5 years. 

1

You are far stronger than you will ever give yourself credit for

Most of us really don't know how strong we are until being strong is our only option. If you are a regular reader of my blog you will know of my mental health battles prior to becoming chronically ill. Because of that, I fretted so much about how I would cope when I received my M.E and later my fibromyalgia diagnosis. I thought I would probably fall apart. Losing my independence, my career, friends, all I'd trained for. It's true that you will grieve for your former life. But illness is consuming and life becomes about coping with what it throws at you on a daily or hourly basis. Whilst also trying to keep your sanity. And to be fair your pain levels under control.

 There are of course times when you can't hack the pain, when you cry at how the simplest of tasks has left you completely depleted. But on the whole you manage. You just do. One of my favourite quotes I like to use as a kind of mantra when life seems unbearable is: 'On particularly rough days, when I'm sure I can't possibly endure. I like to remind myself that my track record for getting through bad days so far is 100%. And that is pretty good.'

Cope with it one minute at a time and try not to let yourself get too far ahead of yourself, imagining the worst. That only adds more stress to an already stressful situation. Also the odd wobble, sobbing self pity fest is perfectly healthy. Sometimes it takes those moments of grief to actually make us appreciate just how well we're doing.

Source: Pinterest

2

Friendships may come and go but you'll learn who really has your back

This is probably one of the harder things to come to terms with. Especially when you feel you've done nothing wrong, except become ill. Which obviously is not your fault. It can be heartbreaking, because this is a time when you need people on your side. But it's the being on your side part that's important, if they're not making the effort to try find out how you are or have some compassion for what you're going through then it's clear what side they're on.

 It can be really difficult standing up for yourself and cutting a former friend loose. Obviously you then fear having no friends at all and making your world even smaller. So it may take time. But in time you won't miss them.

 I know in some cases friendships have fizzled out due partly to my own doing, and again I don't mean becoming ill. Rather, that illness does change you (and that is probably a whole blog topic on its own) you don't feel part of your old world anymore and as a consequence you can feel that you no longer have anything to contribute to conversation. "So what are you up to?" "Err nothing." And cue awkward pause.

The important thing to remember is the amount of friends you have is nothing in comparison to the quality of friendships. Cherish those that understand that making plans may come with conditions, and you may need to cancel them at the last minute, not because you want to but because you have to. That if you don't reply to a message straight away or read it but don't respond instantly, it does not mean you're being ignorant, or don't care what they have to say. Also remember that whatever people think they know and choose to judge you on, only you have the truth. And that actions speak louder than words.

Most of my friendships now are with people I've got to know through the spoonie community. They're my first port of call when I need help. It's strange because obviously most I've never met, but I don't doubt their friendship any less for that. It's what works for our current situations but it's more than illness that bonds us. I do often laugh out loud at an image in my head, that if I were to get married (to my imaginary boyfriend) of myself and a trail of bridesmaids rolling down the aisle.

3

That smiling and laughter are medicine for the soul

Simple, but true. When you get diagnosed with a chronic illness, as you can imagine, it's disheartening and like I said you do go through a grieving process. You wonder if you'll ever laugh or smile again. But somehow you do and hopefully you will smile or laugh at least once a day. My not so secret, secret is to focus on the little things. The fact you've took less pain medication today, you've seen the cutest meme on Instagram. Eat something yummy. Have a mini pamper session. Or put on your favourite TV show or film, even though you've seen it a thousand times but you know it will make you laugh. I've got to the point where if ever I need both my parents to help hold me up and support me to walk I start singing 'let's all do the conga,' because I'd rather laugh and smile at how grateful I am to have such supportive parents, than think this is so depressing.

I already have some blog posts on happiness, in particular my 'happiness is...' series if you would like some ideas. I hope to continue writing more on happiness, confidence and self worth soon.

Source: Pinterest

4

To grab opportunities and have adventures

Obviously this is something that is subjective to each sufferer because no 2 are alike and we are all affected differently or have differing life situations. It's true though that we all must learn to see that achievements are not just life's big milestones, but the milestones you achieve with your health. Getting downstairs for the first time in months, being able to concentrate enough to read a book, walking into a restaurant rather than have to be wheeled. These are no less worthy achievements.

My own personal experiences have shown me that every now and again if an opportunity comes along and I feel I could scrape by then I go for it. So far I am lucky enough that that has included some holidays and even an amazing experience of being in the studio audience of Strictly. You can read about these experiences here on my blog.

 Yes, there's a lot of planning involved and usually smiling through extreme pain. As well as the agony of payback in the form of post exertion malaise. But making new happy memories that you can look back on with fondness, will help you to cope on those bed bound days. There is no such thing as a break from chronic illness but every once in a while you can try divert your attention. Within your limits of course. Life is far from over. It's about learning to live in the moment, taking advantage of your better days. And ultimately, knowing that because there is no cure, that you cannot delay your chance at happiness, you must grab it as it happens. You can't put off being happy until you are better. You will only rob yourself in doing so.

5

That you will have a whole new self respect for your body

You'll learn to read it and continually self assess. As well as a whole improved view on body image, because you are no longer as wrapped up in what your body looks like and hating on it. But rather what it can do and how much it puts up with. You are now so grateful for it for surviving through years of pain and for the times it allows you to have little adventures. It deserves your love and respect not hate and disdain. As ever self care and having a healthy relationship with your body is about what you put into your body, as well as being careful how you treat yourself physically and mentally. Your body and you yourself are doing the best you can within these circumstances, so treat yourself with care and respect.


As I'm feeling generous and I believe it needs saying, I'm throwing in a 6th nugget of wisdom. And that is: Healing and recovery are not linear. There will be peaks and troughs, better times and worse times. Times you cope better mentally than others. Set backs and relapses. So, never beat yourself up that you are not progressing as quickly as you would like. That you could do something one day but not the next. Remember illness, especially where PEM is involved, doesn't work like that. Never, look at everyone else's achievements and feel inferior, because they are making their own path not yours. Rest when you need to rest, cry when you need to cry and move at your own pace. Celebrate each achievement and give yourself lots of credit and praise for them, because it's you that's doing all the hard work. And yes, putting up with a chronic illness certainly is hard work.

What are the biggest things that you have learnt from becoming chronically ill? Let me know in the comments.

Until next time
Sian
X

Highlights of 2015

Hi everyone! Firstly apologies things have been a bit quiet on the blogging front recently. But don't worry it's not due to being too ill to do so. In fact I've just been enjoying squeezing as much as possible out of life recently. Focusing on Christmas, family and friends. And I've been feeling very grateful lately and full of hope and positivity, which just feels amazing in itself.

Positivity and gratitude have been things I've really worked on in recent years and although at times it can be difficult to do, especially with a chronic illness, there are plenty of ways and means to at least try. Trying in itself is a great thing. Of course there have been plenty of times this year where I have felt down, alone and left out but trying to be as positive as possible has been a highlight this year, for sure. Whilst I'm on this topic, I want to mention the wonderful Meg Says' blogpost on how she keeps positive living with a chronic illness, which you can read here. It is a thoroughly recommended read by such a ray of sunshine.

Continuing the positivity theme, today's post is my highlights of 2015. "Wow! What a year!" Also where on earth did the time go?

Back in February my Mum and I went on a long weekend to Brussels to visit family, and to eat waffles and chocolate of course. I had not been on a city break since I'd been ill and had my fears about doing so but I coped really well and in the process had a lot of fun. You can read more about my trip here.

In April I managed to meet up with one of my dearest friends, Ali and her family for a weekend. We have met up a couple of times before, having originally got to know eachother online through the chonic illness community and finding we shared much more than an illness. We speak every day but spending time with her in person is extra special, especially as it takes a lot for both of us. But time spent with this sparkley princess is well worth it and I am very thankful to have her and her beautiful daughter in my life. We both did a blogpost about our weekend as part of ME awareness week, which you can read here

On May 12th ME awareness day myself and several other wonderful ladies and one equally wonderful man dressed up as Princesses (or a Queen in my case) to raise awareness as we took part in another The Princesses and ME event. This year I am so proud of the fact that Team Princess fundraised for every single ME charity in the UK and one in Australia. I really wanted to expand the event this year and to be sure we were championing the cause as a whole, from the charities that raise money for research, to those that offer invalueable support for sufferers and their families. Together we raised £6288 and in the 2 years this event has been running we have raised over £10,000. I am so grateful to all that take part each year, who give it their all even though what they have to give might not seem a lot. They're true princesses. You can read more about The Princesses and M.E event here.

I feel incredibley lucky to have received a Smile for ME gift this year. Smile for ME is actually a small charity that we helped during our Princesses and M.E event. They send gifts to people with ME or their carers that might be in need of a smile and a pick me up when things get particularly tough. I am in awe of the work that Gracey and Alice, the charity's founders, put in to this despite suffering with ME themselves. Their wish to make others happy is so simple yet so important. Kindness often gets overlooked in this world yet it is one of the greatest gifts that you can give someone. You can find out more about this charity at www.smileforme.org.uk

Also in May I was back in the theatre to watch Pasha Kovalev, from Strictly Come Dancing in his own dance show. It was a great show and made me feel so positive and humble. I also got to meet him and the other dancers in the show afterwards, which left me literally speechless even though I have met him before. He is just so handsome and such a gentleman. I'm gradually reintroducing myself to the theatre. As I used to work in theatre it's been something that I have avoided for more emotional reasons as well as the physical ones. Dance shows have been an easy reintroduction as they are a bit more distant to what I would be doing and of course Pasha helps. I look forward though to hopefully enjoying more theatre in 2016.

In July I went on holiday to Zante. As many of you will know I've been on holiday a few times since getting ill but this again felt like a challenge. Going away is always a challenge, however another big factor here was that we travelled to somewhere new. I achieved a lot on this holiday and was made up with the amount of walking I managed. Needing a wheelchair at times got me down whilst in Zante, more than it has before, mainly because of accessibility and being limited. As well as at times feeling like you are known more as the lady in the wheelchair rather than just Sian. But overall I am really glad we tried somewhere new and got to see a bit more of the world. I am still trying my best to give myself as much life experience as possible, despite my condition. You can read a bit more about my holiday here.

This could well be the highlight of my year, or actually much longer than that. I was incredibley lucky to win tickets to be in the audience of Strictly Come Dancing, back in September. I still can't quite believe it happened, it's very surreal but I had the most wonderful time. I love Strictly and getting to see it filmed live was just incredible. Honestly I struggle to find the words to describe the experience, I did blog about my Strictly adventure though where I try to put it into words, which you can read here and here. Also I can confirm that Gleb is just as hot in real life.

On the day of my birthday I was fairly unwell and completely bedbound but I wasn't going to let that get me down. I had had a lovely weekend seeing family and was boosted full of happiness by lots of lovely birthday messages from friends. The postman had been kept very busy bringing cards and parcels, which I managed to open a few of in the evening after the sugar rush from my amazing birthday cake from Sponge. When you have a cake like that it's bound to turn a frown upside down. I felt very blessed to recieve such wonderful gifts and have such gems for friends.

Christmas this year was full of loveliness spent with family. Being surrounded by those you love most and who support you unconditionally is the best. I was spoilt with lovely gifts and cards from friends and family. For me Christmas is a time of giving and I loved planning the gifts I got for people. I will speak a bit more about some of the gifts in my next post. When you hear that they have evoked such emotion and happiness it's heart warming. There is no greater feeling than that of boosting others up and making them feel happy. The star on top of my Christmas was the fact that my health held up really well and allowed me to achieve more than I ever could have hoped for. And so of course I made the most of that wonderful silver lining.

One thing that I am particularly proud of this year is the way in which I have 'made a stand' and said I am not going to put up with feeling neglected (medically speaking) anymore. That it was ridiculous to be suffering so much and not even going to see my doctor. They can't even try to help if they don't know how badly you are suffering. So I am so glad that I took my health into my own hands in a way. 2016 promises a lot on the medical front, which will be tough but this is one of the most important 'projects' I will ever undertake and by gum is it worth it.

The best thing about this year though has not been an event or something physical but the people that I have shared my year with. I know that's so soppy. But I feel very blessed to have family and friends to share these moments with. Who physically care for me and make all the events possible or even just considerable. Who hold my hand through the bad times and clap their hands through the good times. They celebrate my achievements without judgement and with genuine compassion. Most of all they make this world less lonely and fill it with smiles and laughter. They make me happy and they make me feel safe. There are not enough words for how much I love them. Thank you everyone, you're my heroes.

So far his blogpost has included some of my biggest highlights scale wise and when I wee them all put together it really makes me feel quite staggered and amazed by what I have achieved this year. For many it may even look like I'm not all that unwell. Non of it has been easy by any means and my health has deteriorated even more but I refuse to let it win. I refuse to not be happy and not at least try to live as much of a life as I can, within my capabilities.

There have been many other highlights that may be considered smaller but to me they are still very big achievements and have a definite space in my heart. And I couldn't write a highlights post without including them.

* Having my first stand up shower in 3 years

* Managing to walk from the car to inside a restaurant

* Making Rocky Roads and actually going to the shop to get ingredients

* Managing a 6 hour road trip

* Being able to wrap Christmas presents

* Each meal I have managed to have out

* The visits to family

* Every single laugh and smile (cheesey I know)

And there is probably many more. 2016 will bring plenty of new challenges and I will need to dig deep and give as much grit and determination as I can give. But I can do that. I have to do that. Because there is the promise of better days and happiness.

Happy New Year to you all! I hope it is full of beautiful moments that you cherish, smiles and laughter. Hold on to each one and give it a space in your heart then you'll always have so much to be thankful for. Remember, you've got this! 

Sian 

xx

Strictly Audience Experience

Copyright; Sian Wootton
From l-r Front entrance of Elstree Studios, our tickets validated with our sticker number, Strictly glammed up, in the queue waiting for our tickets to be validated, the queue as we left at around 9.30am, us on the television

Funnily I'm still struggling to find the words to fully describe this experience, but I will try for blogging purposes. And there is just so much to talk about. So much, I'm going to split it into two blog posts, but this is still going to be quite a long one. One post will be on the audience experience, which will hopefully be of use to any lucky folk that manage to get tickets. Or anyone that wants to learn a bit more about behind the scenes of one of our biggest television shows. Then I will do a separate one on the experience from a disability/ chronic illness perspective. So as not to bore the healthy folk hehe. Also apologies for just the one collage of photos the computer I edit on is in for repairs, so I could only do the one.

I signed up for Strictly tickets in late August. I think it was the day they opened the application. You can apply for as many dates as possible, including Blackpool but only once and only a maximum of 2 tickets per household. It also comes up with the option to put in whether you have access needs and what you need. You should then get an email to say you have applied and when you should hear back. Generally it's 2 weeks before the date. I applied for most dates. And was lucky enough to win tickets to the first date I applied for, which was 25th September. The first of the live shows where the celebrities dance for the first time. This show is a little different to usual as not all the couples danced and there was also no elimination show, so the experience is a little different to the normal Strictly experience. I heard I'd got tickets on 11th September, firstly via text message then email, which had an attachment with the tickets to print out.

On the ticket it explains the dress code as glamorous, strictly no jeans, and what you can and can't bring into the studio with you. It also explains that the ticket you recieve via email does not guarantee you access. You need to get them validated on the day. This is because they send out more tickets than there are seats available, in order to guarantee a full studio, as they have a fair amount of no shows. I'm not sure of the actual figures, however on that date there were around 500 audience plus friends and family. All in all they process 650 people. As there was only 6 competing couples dancing on that date I'm not sure how this is reflected in the normal ratio of public/guest tickets or whether the numbers are the same. On the email print out it explains that they will start validating tickets from 9am and access on site is from 3pm. It's important to read between the lines here, and know that getting your ticket validated is the only way to guarantee access. Which means queuing up in the morning. If you look online you'll find varying information about what time to start queuing and I'm sure it changes from date to date. Especially from year to year, and panic builds that last year the person queing from 7am got tickets 50 and 51 and the year later those in the queue from 7am getting tickets 100 and 101. That's just an example don't take those numbers as gold. The best I can do is share what happened on the day we went, which I will in a bit. Then it's down to everyone what time they decide they want to queue from.

As we were travelling down from Wales, we decided to travel down the day before and stop over night near the studios. We got a room in the Ibis Borehamwood, which is the closest hotel to the studios at only a five minute walk. You simply exit the front of the hotel, turn right, cross over at the pelican crossing and take the next left. Go past the visitor entrance through a small car park and ahead you'll see a field with a path on which people queue. The Ibis is a nice enough hotel, with plenty of parking as it backs onto the civic centre car park. A lot of people use this car park for the studios. Hotel guests can park there for free with a voucher from reception.  Breakfast is £6.50 for continental and £8.50 for cooked (and continental) but wasn't really worth it. To be honest we probably should have bought something with us. On a practical level you can probably get in the queue quicker too.

We got into the queue, just after 8am. I was quite shocked by how many people were in the queue already. There were people sitting in camp chairs, wrapped up in blankets, even some in those foil blankets. All to the annoyance of the parents doing the school run. Apparently those at the very front that looked liked they had camped overnight had queued since 2am! Luckily it was quite a nice day and most importantly dry. I think they should put a porch style roof over the walk way, as I imagine if it was pouring down it would be quite hard, especially later on in your Strictly glam. Although it does say on the tickets to be prepared for the elements. The atmosphere in the queue is fun and it's great to talk all things Strictly. There is a Costa Coffee in the Tesco nearby (don't ask me exactly where, as I don't know) if one of you wants to go get a hot drink. There is also some bushes if you really do need to go to the loo. Hehe. Just after 9am the validation staff came out. There were two people scanning the tickets and giving out number stickers and a man with a mic, who came along and explained what was going to happen. He does repeat it at different points in the queue but do ask questions too as you go passed should you wish. As the show that night didn't go live until 9pm he explained that even though it said on our ticket access on site is from 3pm that we could actually return at 5pm. The queue then moves quite quickly. I think those arriving around 10am would get a totally false sense of how many people had queued, until they saw their sticker number. We got sticker numbers 207 and 208. I later spoke to someone that queued from 10am and they were sat on the upper level opposite the Clauditorium. Being in a wheelchair our sticker numbers didn't matter so much in terms of seating but it was still important we got them and our tickets validated to guarantee entry.

We were back in our hotel room around 9.45am, and had the rest of the day to relax and then get Strictly glammed up. Around 2.30pm we went downstairs to the bar and ordered food from the snack menu, which is available 24 hours so could come in handy for any after show munchies. It's not so much a 'snack' menu either, with toasties, pizzas, mac and cheese and a green Thai curry on the menu. However this was good for us as it meant we could have a big lunch to help see us through the evening. We then started to get ready. We decided to leave our mobiles at the hotel, given you can't take them into the studios and I'd heard the queue to get them back at the end of the night can be quite long. Although of course if you are driving or on the train then it may be best to hand it in.

We arrived back at the visitors entrance at 5pm and there was a long queue outside again. With being in a wheelchair we were told to go to the front, so that they could get those with mobility issues into the marquee safely and sat down at the front. So I can't really tell you how long you're likely to be queing. As soon as you're inside the marquee, you hand in your phone and also go through security. Once inside there's lots of seating where you can sit and watch tv and chat to other Strictly fanatics, that still can't quite believe their luck. Or admire everyones outfits. There's a cloakroom where they recommend you leave your coats as having them on the back of your seat will look quite messy. This is the BBC darlings. The queue to get your coats back is not long especially compared to the queue to get phones back. There's a bar, and a separate stand for tea and coffee. You can drink in the marquee but once you go into the studio you can only take water with a screw top in. Outside the marquee, are some rather plush portaloos. The hosts on the mic will tell you countless times to use them before you go into the into the studio. As once you're in there, there's not much chance to go. Also a new addition for this year is a photo booth, which has a Strictly background and where you can pose for 4 photos with various props, including the scoring paddles. You get 2 free printouts. I think this is a great touch, as a little extra souvenier to remember your time there. Especially as you're not allowed to take your own photographs. I tried to be too posey and just ended up looking like Claudia trying to read the autocue.

We were in the marquee till after 7pm. The hosts kept us up to date at all times, building up the excitement, joking and sharing some Strictly trivia. They liked to remind everyone that this year 4.5 million people had applied for tickets, and so we were very lucky. Just after 7pm once everyone was in and the studio was clear of people rehearsing, they announced the first lot of numbers, which were 1-24. The host joked that these were the people that had been queing up for 3 weeks. After them they took in our group of those in wheelchairs and less mobile. You enter into the studio from the back, so facing the band. It was exciting to see some of the props and wonder who would be using them. When I saw the giant storm cloud I got rather giddy that Carol and Pasha would be dancing that night. I'm not sure if the memory of Pasha on that cloud will ever leave me. As we came out of backstage and we were out on the Strictly set, it was such a bizzare moment. A bit like finding Narnia at the back of your wardrobe, even though you know what's coming. It's rather surreal and much bigger than expected. The first group of people were sat at the end of the dance floor, facing the band and the main staircase. At first I was quite confused as I expected our group to be sat there. When I'd asked in the morning that is what they had said. Also I thought that with those ticket numbers they would be sat on Bruno's side of the judges table and most likely to be on the television. To add to my disbelief they then wheeled us over to the chairs to Craig's side of the judges table and said we could transfer into them. I thought they were joking, especially as they said the front row. When I was safely in the chair I felt my tummy go "oh heck." I'm not sure how many times me and my Mum said no in utter disbelief. Then I had a moment of "I wish I had my phone, look where I am?" Like I said we had stickers 207 and 208 and I saw the women that were in the queue in front and behind us were sat on the opposite side to the judges table about 3 or 4 rows back.

Once everyone was in the studio, including all the friends and family, Stuart the warm up guy took over. Grabbing everyone's attention in a leopard print suit and green shirt. He was really great at getting the audience even more excited for the show, as well as explain what was happening. He explained that first they were going to prefilm one of the pro dances, the one you will have seen on week 2 results show (4/10/2015) and shortly after introduced the pro dancers. Oh my they are all stunning. Brendan told us to cover our hair with our hands as they had to take Aliona's extra long skirt over our heads. Stuart had warned us though not to do it (or scream of the static shock ;-) ) when they took it back over us during the dance and the cameras were rolling. I had Ola at her starting position to the side of me and Pasha on one knee infront (of course I said yes). They had to stop the first take quite soon though, as Oti had hit a woman in the audience during one of her moves. Luckily she was fine, and poor Oti took some ribbing from Stuart. Ola turned around to me and said "it's alright I won't hit you," for which I'm glad she didn't. They then did another 2 takes. I didn't really know where to look as there was so much going on. When all the couples were in hold it was pretty spectacular. I got goose bumps. It actually topped Janette spinning at break neck speed on the aerial, which was also pretty incredible.

Between takes you'll find Anton larking about. He made one woman scream as he snook up on her from behind. He came up to a lady on our row and said "hello Nanna" (she wasn't) followed by a kiss on the cheek. Then proceeded to give our whole row (all women) a kiss so we didn't feel left out. So I guess that makes me the envy of a lot of Strictly fans.

Once they finished filming the pro dance, the pros went off to change for the show and the stage reset. During this time Stuart picked one lady from the audience (sitting on Bruno's side of the table a few rows back) and asked if she wanted to walk down the famous stairs. She was shaking so much "because this is Strictly" in disbelief at getting to walk down the stairs. She and Stuart walked up the stairs, he announced their names, to which we all cheered and they walked down, stood pretending to get the judges comments for a while then walked off and up to the Clauditorium.

Then he introduced Tess and Claudia as they came into the studio. I'll admit to never being the biggest Tess Daly fan beforehand but she is actually really warm and personable, plus absolutely gorgeous. Plus she did say "Hi, sparkly lady on the front row" to me so that gave her some extra marks. Both hers and Claudia's heels are ridiculously high, Claudia could barely walk. Claudia was really nervous too, but used it to her comedic advantage. Joking that her dress smelled of sick after just throwing up. She was also thrilled to see a man from Great Ormond Street hospital in the audience and introduced him to everyone. They rehearsed their opening as well as some other bits. This was as much for the audience too so that we knew not to sing along to the themetune and when to react to their lines. They then left again for final preparations. During which time Stuart reminded us to give as much support as possible to the contestants as the came down the stairs and as they performed. Especially as this was their first time dancing and they were very nervous. And I think having the support of a live audience helped them be more confident.

Not long before going live they gave us a Kit Kat, 4 fingers no less and a box of apple juice. Although there wasn't much time to actually eat/ drink much, pretty soon they were rushing around trying to collect all the rubbish before the show started. During this time the judges also came onto set. They were introduced to the audience and then they posed for some photographs with paddles that spelt out "vote."

The next thing we knew there was 5 minutes till we were going live. There's such a ripple of excitement that goes round the audience at that point. Everyone got into their starting positions and Stuart reminded us to show the couples as much support as possible. Then all of a sudden they were counting down from 10, the theme music began to play and we were cued to start clapping. Just before this I had started eating a cough sweet and consequently tried to hide it in the side of my mouth as the camera went passed, it resulted in me looking like I was giving Craig a dirty look haha. Lesson learned. I did like his sparkly brogues though.

Watching the show live you get so caught up in the atmosphere of being there and getting to experience the show in a way you can't get watching it on tv. You forget that it's actually live on tv too. The six couples performing on that night were Kelly and Kevin, Anthony and Oti, Helen and Aljaz, Carol and Pasha, Daniel and Kristina and Anita and Gleb. Kelly opened the show with such confidence and attack, it really got the audience going. Although the loudest cheer probably went to Pasha as he was flown up in the air on the storm cloud, poor Carol could barely start her weather forecast part. The biggest suprise for me was how well Daniel O'Donnell danced. I was expecting him to be the comedy turn this year, but more fool me, he was really graceful and didn't go wrong at all. It was almost as big a shock as seeing that rip in Anthony's trousers. However the night belonged to Anita and Gleb, she really looked like she had such a good time and gave such a confident performance. Watching Gleb dance was no great hardship either.

All too soon the show had ended. It went by so quickly. I could have happily sat there a whole lot longer and wished we could just continue with the rest of the couples. We did get a sneaky peak at some of them though as after they cut they did some quick rehearsing on the dance floor. Both myself and my Mum were amazed by Jay's hips and predicted he would do well. Aliona looked like the cat that got the cream. The only protest for not being there longer was from my back. The seats are rather uncomfortable and didn't do my aches and pains any good. I should have used the cushion from my wheelchair. As we left the studio and the marquee all the staff asked if we'd had a good time and wished us a good night. I really have to applaud the audience staff as they were all so friendly and helpful. The whole organization of the evening was geared to give the audience a fantastic experience, beyond the entertainment on the dance floor and my Mum and I sure did.

It was all very surreal in all honesty. As we left the studio and walked back to the hotel that seemed to be the theme of conversations. No one could quite believe they were on Strictly. I was so excited though to get back to the hotel and see the messages on my phone. There was lots of photos of friends tv screens and even video and people in shock at how good our seats were. It did take a while getting to sleep that night, trying to wind down from so much excitement. Even after watching the recording of that nights show (a fair few times) and seeing myself on tv, it still hasn't fully sunk in. Watching the show now is not the same, I love the show more than ever and I feel so privileged to have experienced it live. However each week now I long to be there. It really is an experience that will stay with me for a long time.

A very big thank you to everyone that works at BBC shows and tours and to the cast and crew of Strictly Come Dancing that work so hard to make this show the institution that it is.

Sian X

Long haul travel tips for Spoonies

Finally, here's my tips on how to cope with long haul travel as a chronically ill or disabled person. Buckle up, ironically this is a long post.

Research

When planning your trip it's important to consider the length of time you want to go for. Be realistic in remembering that the journey will require recovery time, which could be longer than you first imagine and you are unlikely to get to see much of your destination. However of course the whole point of going is to "explore" a new place, so you need to give yourself enough time to do this, whilst also allowing time for rest and recovery. Also think about recovery time if you want to go on any day trips whilst away. 

Also consider whether you can afford to upgrade to better seats with more leg room on the flight. Having more room is certainly an advantage however of course paying for the privledge is not within everyone's means. Ring your airline or visit their website to see where their special assistance seats are, whether they have set seats for each class, or whether they will allow you to choose where you want to sit. This can all depend on your disability or illness too, so discuss this with the special assistance team. All airlines will prevent you from sitting in the exit rows for safety reasons but there may be other extra leg room seats you might be able to reserve, which would be beneficial especially if you're in economy. Choose one that is close to a toilet if needed. 

For more information on the best plane seats visit Seatguru at www.seatguru.com to research good seats for the type of plane you will be travelling on. Perhaps have this open as you speak with the airlines special assistance team.  

When researching destinations be sure to check if you need immunisations to travel to where you wish to go. Consider whether your body will be able to handle such injections.

Check your medication is legal in the country you are going to and seek advice on how to proceed. You don't want to get stopped by customs. You should always carry a prescription with your address on it or medical note anyway, along with your medications in your hand luggage. Also whilst on the flight remember to take your medications as per usual. Keep your watch on the same time as your home country so you can keep an eye out or set alarms on your phone or watch.

 

Visit the airlines website. Make yourself as familar as possible with their special assistance policies. Check the types of meals and snacks that are available onboard, especially if you have allergies or food intolerances. This will help you plan what food to pack in your handluggage or to be bought at the airport. You can check what films and tv shows they will be showing. You can plan what you want to watch or if nothing really takes your fancy then you know to bring plenty of your own entertainment. Whether that be downloading films to a laptop or tablet or bringing a kindle, books and puzzle books. 

Visit the airports website.  I would look up the special assistance policies for each of the airports you will be travelling through, so you can have an idea what to expect. Remember although you book special assistance through your airline they are only responsible for your care on board. Whilst you are at the airport you're in the hands of their special assistance team, so be sure to check both your airline and each airports policies.

 Also whilst you're on the airports website look up what shops and restaurants are available at each airport you will be at. This can help you plan where you will eat or get snacks. Again this is particularly useful if you have food intolerances so you know that you can get food at certain places. This can be really useful if you have a layover as you can plan where to go and how best to utilise your time. Alternatively there is the app gareguru and trip advisor.

If you suffer from food allergies or intolerances and have concerns about managing abroad be sure to take a look at www.celiactravel.com for advice on how to ask for free from foods and printable cards in different languages to explain your intolerances. If you are staying bed and breakfast, half board, full board or all inclusive contact your hotel in advance to enquire what free from foods they provide, or put in a special request for certain items.

 

Consider booking into one of the airport lounges so that you can relax in a quieter less chaotic environment before your flight. This is also a great idea if you have a stopover between flights, so you can have somewhere quiet to go recover and prepare for the next flight. Or if you are travelling alone as you know you can get everything you need in the one space without going far and the airport special assistance team know exactly where you are to collect you. If you are travelling alone and haven't booked into a lounge my friend Hannah recommends trying your luck and asking if they will let you wait in there for some peace and quiet. You never know. If they say no, ask them to take you to a quieter spot and don't be afraid to ask them to get you a drink or something to eat.

Packing and preflight

Getting a lot of good quality sleep before you fly is recommended. Sleep is our bodies way of recovering and also keeping our health in check. If you do sleep on the plane it won't be as deep a sleep with being in a busy surrounding. So get plenty of sleep before a trip as well as trying to sleep on the plane as much as you can.

You will often get a sleep kit from the airline with things like a small pillow, blanket and sleep mask however I recommend taking your own things so that you're extra comfortable. Having your own things that are tried and tested to make you feel safe and cosy especially if you are an anxious flyer is a bonus. Sometimes just the smell of them can evoke calm. A sleep mask can help you block out any light and aid better sleep. Also consider noise cancelling headphones or earplugs to help block out noise. 

I say this is in any of my travel posts but it's so important. Pack the items that you need to feel as comfortable and relaxed as possible in your handluggage. Whatever you use at home to achieve this, bring it. You need all the extras you can when in a new and potentially uncomfortable environment. Anything at all that you use when you want to try feel better.

So pack those favourite fluffy socks or essential oils, as long as they're under 100ml and in a clear bag. If you drink a special tea to help you relax bring some tea bags and just ask for hot water when you're on the plane. Comfort is key! These items will help you during the flight but also throughout your trip. Having items you're familar with and known to help you feel better will help comfort you when you are having a flare.

On that note sadly you can't have a hot water bottle or electric heat pad on a plane. Although you can pack them in your checked luggage, which is what I do. If these are things you rely on and worry you might suffer aches and pains you would usually treat with heat, purchase some heat patches that you apply to the skin. You can buy different types for different areas and they last up to 8 hours.

Comfort is key! Yes I said it again. Choose a travelling outfit that is really comfortable. I'd wear pyjamas but I think that's frowned upon. Although I've seen a few people (older than 3) brave it out. So wear the next best most comfortable thing. Stretchy trousers that don't cut you off at the middle. Remember your stomach and legs swell whilst flying so a forgiving waist band is best. Wear shoes you can easily slip on and off and pack extra socks or slippers to keep your feet warm. A big scarf is often good as it can be doubled up as a blanket or as an extra cushion. Layers are also good as you never know what the temperature on the plane is going to be. Just remember to take them all with you when you land.

Wear flight socks/ compression stockings. This will help reduce any swelling in your legs and help prevent DVT's. They are great if you are not used to sitting for that length of time and if sitting usually causes your legs to ache. Or if you experience blood pooling, poor blood flow in your legs. Put them on before you get on the plane.

Bring snacks- You get food on the plane but this might come at times when you are not really hungry or you just don't like what's on offer, or they don't provide anything suitable for your dietary requirements. Especially bring food with you if you have allergies or observe a certain type of diet. You can pick things up at the airport (again visit the airports website to see what shops are there, so you know you can get snacks there) or if you have room in your handluggage bring things from home. Don't put anything in tin foil though as this will cause trouble going through security. Graze snacks are great as they are in small packets. They now do the slightly bigger ones too. I found some in a WH Smith at the airport last time I went away which was useful. Also look at kids lunch box type snack packs like dried fruit or cereal bars. You could also take some things like porridge or noodles that only need hot water.  Again check security restrictions as to what you can bring through security.

Invest in a water bottle with a filter. Such as the bobble bottle. That way you can make sure you stay hydrated but not have to worry till the next time the drinks trolly comes round. Simply ask the air hostesses to refill and the inbuilt filter will filter away any mankyness of airplane water. Plus you don't have to buy another bottle of water because you've had to chuck one before going through security. Although you will need to make sure it's empty as you go through security. They are also great for using at your destination as that way you can be sure the tap water filtered and less hard, as well as saving money on bottles of water. I would double check though that the tap water where you are going is safe to drink though first.

 Pack a portable phone charger in your handluggage. These are great for if you are using your phone a lot at the airport/ on the plane (on flight mode) as they give you that peace of mind that should you run out of battery you are not stuck without the use of your phone. Or feeling reassured you have enough battery life to use your phone when you land, should you need to contact your transfer or hotel etc. They're also great if you are delayed and stuck at the airport or on a layover (especially if it's a long one). You don't have to worry about finding a power socket in order to charge it. It also doesn't matter then if you are in another country but your plug adaptor is in your checked luggage. 

Stay hydrated. Planes will quickly dehydrate you. Drink as much water as you can before and during a flight to stay hydrated. Avoid alcohol and caffeine as this will dehydrate you even more. I know this can be difficult especially if your nerves affect your bladder but do your best.

Avoid big meals. Before flying and during a flight be aware of what you eat. Eating smaller meals and snacks is best because of the effect of the air pressure on your digestive system. Your body cannot digest food as well when you are at altitude and so a bigger meal will cause even more bloatedness and cause you discomfort. Give your stomach an extra helping hand my choosing more easily digestable foods. This is another way you can help ensure you feel as well as possible after the flight, because let's face it you're going to feel cruddy enough.

At the airport

If you are using your own wheelchair your wheelchair will be stowed in the hold at the gate, usually after you have boarded the plane. If you have any stopovers chances are you won't see your luggage until your destination but it's important to check with your airline what the policy is for medical equipment. I've heard that in some instances your personal wheelchair will be tagged with your final destination and therefore once you land at your layover airport it will be taken with the luggage to your next plane. Meaning they won't reunite you with your personal wheelchair until your final destination and you'll be given one of the airports during the layover. Do seek advise from your airline over what to expect, especially if you have a specialist wheelchair designed especially to fit your personal frame and keep you supported or a power chair.

A lot of airports now have those massage armchairs or some even have masseuses, before you board this may be an option to help get your blood flow going. In particular if you are at a stop over airport and you need to recover from the first flight. Keep the pressure light though. Plan your time- One of the things that I predict I would struggle with flying long haul is what to do for that amount of time. Ok I'm used to hours of doing nothing confined to my room but not spending that amount of time on a plane. Spending an hour on a plane is enough for me in all honesty but the world has some pretty fab places that are more than an hour away.  In my travel interview with Hannah, she said that she likes to make a rough plan of how she is going to use up the time, which also allows her to pace and ensure she gets plenty of rest. Plan to get as much rest or sleep as you can but also use lots of distraction techniques like watching a film or listening to an audio book, especially if you are a nervous flyer.

Coping with jet lag and managing your stay

 Commonly the advice with jet lag is to fight it and to get yourself in line with the time zone as soon as possible. However being a chronically ill person we know that fighting our body is never going to end well. We have to listen to our bodies. Chances are after such a long flight and stresses of airports you are going to feel pretty unwell and will need to go to bed as soon as possible to recover. Let yourself recover properly before trying to adjust to the time zone and increasing your activity. 24hr room service can be quite handy here or having someone that can go out and stock up on food and drink would be useful.

The unknown is always going to be your biggest obstacle and challenge, however if you prepare yourself as much as possible and have lots of coping mechanisms you can feel more comfortable in the knowledge that you're prepared and armed to tackle any challenges.

Lastly my advice is enjoy it! Have fun and experience as much as you can to the best of your abilities. Also be appreciative and thankful that you have this opportunity. Don't forget to give yourself some appreciation too for taking on this challenge and giving yourself new experiences.

I thoroughly recommend you search Pinterest and other blogs for long haul posts to get as much info as possible from experienced long haul travellers.

 

I hope you find this post useful. Please comment with anymore tips if you have any, would love to hear them. I've linked some more posts that are related below. Or for all my posts on my spoonie travel series visit my travel tips page.

 

Sian X

 

Travel interview with Hannah, including long haul tips

Researching a holiday

Planning a holiday

Getting travel insurance

Booking special assistance

 

 

 

 

Travel interview with Hannah (including long haul)



copyright: Hannah Wallace



 

Today's post is a spoonie travel interview with my darling friend Hannah, who was a very lucky lady recently and travelled to Mauritius. How divine?! As this was a long haul trip, (as well as drawing from some of her other long haul trips) I added in some more specific questions relating to how best to cope with travelling long haul as a chronically ill person. A few people have also asked for this and fingers crossed this is something I hope to do in future. The thought of it does fill me with apprehension, so I personally will be taking notes.

 

Illness/ disability:
Ehlers danlos syndrome, POTs, Fibromyalgia, Bursitis in my hips due to EDS, ME and a number of allergies

 

Destination:
Mauritius

 

Who did you travel with?
Partner

 

What airline did you use?
Air Mauritius

 

First of all, how was your holiday?

 

It was amazing, beautiful and relaxing

 

What was your biggest worry before travelling? And how did you overcome it?

 

Obviously getting more ill on holiday is always a concern. For me things like dislocations, pain, stomach issues and fainting are a constant worry but I try to think I have good medical insurance and I'm with someone that will really look after me. Plus all these things could happen at home too. I've been unwell a long number of years but I remind myself that I'm lucky I'm able to do this with these illnesses. I try and look for the positives. I think being organised is the key, having plenty of help and plan, plan, plan. I think it's natural to worry about things but if I choose to embrace this worry I'm in control. Also I'm very aware how stress affects the body so I try and be mindful about that.

 

Did you notice any changes in your health whilst you were away? Good or bad? Any new symptoms?

 

I had body temperature issues and struggled regulating it. This always happens when I travel as POTs can be iffy in the heat but I'm very mindful of this, so I work with it daily. My joints flare up if it's too hot as it can make me more stretchy, due to the defective collagen in EDS sufferers. Over all my health was all about the same as it is at home, besides bite reactions, a whole mouthful of ulcers (which is very normal for me) and a few nasty headaches. I tried to generally plan well so if I did more activity I made sure recovery was planned after. I realise it sounds not great but it was ok as it was not much more than what I experience at home.

 

How was Mauritius as a destination in relation to your illness/ disability? ( Accessability, flat, close to restaurants etc, quiet)

 

The resort was great. We stayed at the Westin Turtle Bay hotel and I was very impressed overall by the Westin group, especially concerning dietary requirements they were really good. The food and restaurants were over all really good.  It was very accessible as the hotel had been rebuilt due to a recent fire. I would recommend the place. The hotel was quiet too and plenty of space. One day they told us there was going to be some building work near our room and so they moved us to a quieter area.

 

How did you find attitudes/ perceptions towards you by other travellers and from the locals?

 

Other travellers were really nice. Obviously people wonder what's wrong, especially as sometimes they see you walking small amounts etc and others you are in a wheelchair. I think at the end of the day it's natural curiosity. I guess it's how conscious you feel about that. For me personally I'm not too worried. I'm just so appreciative I'm having these experiences that I think screw it. Obviously it's not always been easy to have this attitude, I've lived with this 15 years and learned you have to choose to adjust or it'll torment you. There's always going to be a few twats in life and I have adopted a no twat policy in my life. And to be honest if someone was rude I'd say something back. You do get nosey people but it's the same at home. The locals there were very nice and kind.

 

Do you think that despite all the extra 'hassles' of travelling as a chronically ill/ disabled person it is still worth it?

 

I think it's a personal thing to decide. Obviously a big factor is how unwell you are how well your illness is managed. Like any risk assessment you have to weigh it up. For me it's worth it. But it's been trial and error over the years. It's about being realistic with it all and prepared. Life is full of cause and effect, it's finding the balance within this. Most important is choosing to go with people you trust and knowing you'll be well supported and looked after. If you don't have this it wouldn't be a good idea.

 

From your experience(s) what pieces of advice would you pass on to other spoonie/ disabled travellers/ would be travellers?

 

Good planing all the way is the key. As well as maintaining your routine while away is a good idea. It sounds very controlled but then this allows for flexibility with things. Be organised take the important things from home that keep you comfortable. Be researched on where you're staying even down to the small details, especially with diet stuff. Try and keep any dietary requirements as you do at home. Tummies abroad are definitely more prone to things so by not upsetting this to much you help yourself. Compression socks are essential for flying even if it's only an hour. Make sure they are put on at least an hour or two before the flight and leave them on for an hour after landing. Keep hydrated. Don't wait till your gasping for a drink and have it in a routine as our bodies respond to rhythms. Re-hydration pills are a very good thing to use regulary on holiday especially because in the heat our bodies can react and are extra sensitive to heat. If you can't tolerate booze don't do it I know it's boring but it's not worth it. If you can do it cause I bloody would :))). Keep up your salt levels too, to help muscle cramping and restore anything lost through needing extra hydration or sweating. This all sounds boring but have fun in the ways you can because these moments are so precious. Best advice ever is don't worry what others think end of full stop. ( not the easiest one ) but it will empower you and free you once you embrace this.

 

What items would you not travel without?

 

Aside from medication I wouldn't travel without my supplements I've found things which help and I keep this up while away. Salt is a must for me as I have low blood volume, so I need to put it on my food and take it off my hand regularly to help stop me fainting. I use Redmonds Real Salt, the sea salt. Re-hydration pills. Noise reducing headphones. A super soft neck pillow. My own blanket for the plane. And super warm socks. My silk pillow case and silk dressing gown because these make me feel good. My yantra mat. My iPod and kindle. Pen and notebook. Ghds. Lipstick. A good face cream. A Mala, which I wear. A few crystals, cause I'm crazy. And Miffy of course ;)

 

What are your favourite holiday beauty products?

 

My fave beauty products are not the most luxury but are necessary. I suffer with prickly heat so the Rona Ross prickly heat wash and lotion and skin repair lotion work great, they aren't super expensive and I never travel without them. Other essentials are: Aloe Vera gel. Hydrocortisone (you never know). D pantenol which is great for bites and burns. Marula oil, I love this stuff and use a few drops under my moisturiser. A good cleanser is essential for getting the day off, I tend to take Liz Earle on holiday as I find it the best staple it removes every thing properly. I use Liz Earle face mask that's hydrating too great for after being in the sun or I love aromatherapy associates rose one they work !! Lip balm. Carmex. Good hair protection, this time I used Aveda spray.

 

If you were to go on holiday again what would you do differently?

I don't think I'd do anything differently as I'm fairly well practised. I think I just need to keep being mindful of my limits and be cool with it.

 

How are you after your holiday?

 

Well I didn't expect to feel great after the flight but that was as expected. I did get a minor ear infection which has been a pain but I've made sure I've really rested up after.

 

Did you have to make any special arrangements for transfer from the airport to your hotel because you were in a wheelchair? Or did you/ have you ever encountered any problems about this?

 

I always get a private transfer from the airport but I know people who don't and they have found it ok and people mostly helpful.



Copyright: Hannah Wallace

 

What do you pack in your hand luggage to help you survive a long haul flight?

 

Salt (as explained above). I get coconut water at the airport from Pret or Boots one to have at beginning of the flight and one for just before landing as it's isotonic so it's great for re-hydrating. And I buy loads of water after security so I have enough for the journey. Dark chocolate. Some form of gluten free energy bar and some crackers of sorts. A warm blanket I fold it up and sit on till I need it. Thin gloves. Neck pillow. Warm socks. Lip balm Hydration face spray. Moisturiser. Small hair brush Kindle. iPod. Noise reducing headphones. Mala beads of course ever the yogi. My own Silk eye mask. A bottle of aromatherapy associate breathe oil to sniff and some lavender oil. This time I took small post cards to colour in. I layer clothes so usually take an extra cardi or jumper and pashmina. My own water bottle. Wipes for hands or face. Tissues. Sunglasses for reducing light and headaches. Walking stick. And finally spare pants!

 

What is one thing you should know about flying long haul that is a great tip but a lot of people might not think about before hand?

 

Wear flight socks to help your legs. Also find out if the plane is full. If it's not you may be able to get a few seats to lie across which really helps when flying economy. Don't drink totally cold water, drink it at room temperature or warm it shocks the stomach less If you drink herbal tea take a few bags they'll happily give you hot water.

 

How do you cope for such a long time on a plane?

 

If you haven't flown long haul before becoming ill it's probably not the best time to try it unless you need to for some reason or feel you can cope with this. I cope by making a schedule of sorts. You know food is served fairly soon when you take off and another meal towards the end. Also lights will be dimmed during night hours at some after the meal service for sleep. So I try to make a plan such as meal service, movie, drink, nap, drink, meditation, drink, nap, listen to music, sleep relaxation app. Sometimes I watch two movies but I try to sleep. I find with pain etc it's often harder to sleep and it's frustrating when I see others snoozing away. So if you're lucky sleep as much as you can. But if I'm struggling I try and do it in blocks of 40 mins or an hour and half as these are sleep cycles and you tend to not interrupt sleep cycles. It's never going to be a bed of roses but I highly recommend trying to plan it. Also be aware in sleep times they tend to heat the plane up more so you may suddenly feel warmer, that's why layering your clothes is great. Keep hydrated, it's essential even if you need the bathroom more often. If people around you are asleep you can call a steward to help and take you. And you will always be seated near a toilet and if you're not ask. Making sure you relax properly will also help, which is why all these new relaxation apps they have are great. Noise reducing headphones are definitely a help too. Making a plan really does help because it helps break up the journey too. Move your ankles and feet too, this helps blood flow. If you're ill and travelling alcohol is not a good idea. Wear comfortable clothes you can still look good and comfy but it really makes all the difference. I used to worry saying exactly what I needed from the airline etc but I've learnt being clear with them is good. Chat to the special assistance team of your airline before you fly to arrange what you need and discuss what is available.

 

How do you cope with layovers for connecting flights?

 

Find a quiet spot to relax and get some rest. Having access to an aiport lounge can be a big help. If you don't have access to a lounge then head phones that reduce noise and an eye mask can help you get some quiet. Find a floor or row of chairs where you can stretch out. This can be helpful, not the best but if needs must. Assuming you have people with you to help watch you and your bags. If you're travelling alone it could be worth putting it out there and asking if they could put you in a lounge as special assistance at the airport will help you from the plane and later on, onto the next plane. Again keep hydrated.

 

 

How do you help manage jet lag?

 

I think depending how well the flight goes for you it definitely affects jet lag. But I use extra melatonin to help me. Magnesium oil is great if I can't get a bath. Rest more after your flight and go with the flow, listening to your body. Also when I arrive somewhere I lie on the floor with my legs against a wall well supported and padded this helps blood flow. I do this daily anyway but it's a helpful inversion. Make sure you get up slowly! If I arrive somewhere and they have a bath I will have one before bed. Once I'm back home I will always have a magnesium bath with flakes. Trying to keep to your normal times definitely helps too, although not always easy.

 

What do you find are the biggest challenges flying long haul as a chronically ill person?

 

I think the biggest challenge is coping with pain if it flares up, that's never easy. Being sat for that long with your legs low is a bummer too. That's why even if I'm shattered or painy I like toilet breaks as I know it's moving blood flow. It's the unknown that can be our biggest worry but like my mum always this is the risk you take. I think the time factor is never easy as it's a long time, we tend to do much shorter things so it's demanding, which is why you need to take extra care.

 

In your opinion is it worth paying extra for an upgrade to better seats?

 

It's definitely worth paying for the upgrade if you are able to. Having your legs elevated and more space is a very good thing, you do notice it makes a difference. And if you're not able to my tip is checking if the plane is full or not and asking if you could move to an empty row, so you could stretch along a few seats. I think making sure you meet your personal needs is most important.

 

A big thank you to Hannah for taking the time to do this interview and sharing with us a bit more about how she coped on holiday. It's much appreciated Han! Also a big thank you on the insights into how to cope on a long haul flight. I'm hoping they might come in handy in the future. Hopefully soon I'll have a tips post on more things to consider if you're planning a long haul trip. If you have any specific concerns about travelling long haul that you would like to see mentioned then please leave a comment below and I will do my best to answer them in the tips blogspost. Thanks again Han!

 

Sian