Spoonie Travel Interview with Anna

Malaga
photo by Anna Jones

Illness/ disability: ME/ CFS

Destination: Malaga, Costa del sol, Spain

Who did you travel with? 

My boyfriend, Mr Tree Surgeon

What airline did you use?

British Airways

First of all, how was your holiday?

Wonderful thank you!


What was your biggest worry before travelling? And how did you overcome it/ justify it?

Where do I begin?! It was the first time I had travelled abroad since becoming ill. I had no idea how I would cope with getting through an airport or enduring a flight. I asked my fellow sufferers who had already attempted foreign holidays what to expect and tried to keep an open, calm mind.

Did you have to make any special arrangements for transfer from the airport to the hotel because you were in a wheelchair? Or did you, or have you ever, encountered any problems about this?

We stayed in an apartment and had contacted the host prior to our arrival about the best way to get across the city from the airport. We considered hiring a car but parking was restricted so we got a taxi from the taxi stand at the airport. The wheelchair posed no problems – although trying to give directions to a driver who didn’t speak English did!!!

Did you notice any changes in your health whilst away? Good or bad? Any new symptoms?

Nothing out of the ordinary or that wasn’t expected. I struggled with the warmer days as I have problems with temperature regulation. I initially struggled a little with the time difference, even though it’s only an hour. Sadly, but not surprisingly, I didn’t get the remission that some people had mentioned they’d had while they were abroad.

How was Malaga as a resort/ destination in relation to your illnesses/disability? (Access, flat, close to restaurants etc, quiet)

Really, really impressive! Even the beaches were wheelchair accessible. A lot of the city was pedestrianised and there were pelican crossings almost everywhere. In 10 days we only had one problem with a drop kerb which is so much better than our experience of the UK. The apartment was in a quiet residential area away from the tourist district and the city centre. The only down side was that it was up a hill. On the one day I tried to stretch my legs I managed to get down the hill but then couldn’t get back up it! There were beaches and restaurants right on our doorstep and everything was in walking/wheeling distance.

How did you find attitudes/perceptions towards you by other travellers and from the locals?

Surprisingly the most negative attitudes belonged to the staff at Gatwick Airport, particularly those of the security staff and the Special Assistance Team. We were shocked by their distinct lack of compassion and care. If I handed over our passports and boarding cards, they were handed back to Mr Tree Surgeon and I was completely ignored.

In comparison I was treated like royalty by the staff at Malaga Airport. All of the restaurant staff and locals that we came across were incredibly accommodating of the wheelchair and I was made to feel like an equal for the whole holiday – something that doesn’t always happen. They took it all in their stride. I took a tumble out of the wheelchair on the way back home and a local couple came to help. There was building work on our road and we had to pass a skip that was right up against the wall, the builders helped Mr Tree Surgeon carry our shopping and the wheelchair while I shuffled past. It was really lovely.

From your experience(s) what piece(s) of advice would you pass on to other spoonie/disabled travellers?

Accept any help offered if it will mean you can save your precious energy for the actual event. You cannot be too organised. That said, there comes a time where you just have to stop or you’ll worry yourself silly. I had to zip my suitcase up to stop myself from panicking about what I had or hadn’t packed. Lists are amazing! Write down the essentials like medication and tick them off as you go. With memory problems it helped enormously.

Do you think that despite all the extra 'hassles' of travelling as a chronically ill person it is still worth it?

Most definitely

View from my bed
photo by Anna Jones

What items would you not travel without?

Ear defenders!!!

What are your must have items for in your hand luggage?

Rescue Remedy sweets to suck on – you obviously have to be careful with the liquid form. A woolly hat. A book. My iPhone. My prescription medication. Spare pants and socks, and a toothbrush, in case my luggage gets lost.

What other disability/illness related essentials do you pack?

A hot water bottle and disposable ice packs would have been good but I ran out of space. I’ll definitely pack them next time.

What are your favourite holiday beauty products?

I’m not really one for beauty products but I do love Rimmel’s Wake Me Up concealer after reading one of your blog posts. It definitely helped cover the dark circles under my eyes after a day of travelling.

If you were to go on holiday again what would you do differently?

Next time I’m sure I would be far less worried because I now know what to expect. I would pack more dresses to go over leggings as they proved to be the most comfortable outfits for sitting in the wheelchair in the ‘heat.’ Even jeggings became uncomfortable after awhile.

How are you after the holiday?

Not too bad! Well…you know how it is. Payback and post-exertional malaise. We were very sensible and had slow, lazy mornings each day so as not to push my body to do more than it could to soon. We did get into the holiday spirit and I did more than I would do at home but using the wheelchair saved so much energy! I made it out, at least for coffee, most days – which was incredible! Maybe I should brave using my chair more often at home…


Did your experiences make you want to travel again? If yes where would you like to go?

Yes. I was reminded though that I don’t manage so well in the heat – and it was only 22 degrees celsius! And we’ve had so many lovely holidays around the UK that I don’t feel desperate to get back on a plane. Having glorious sunshine everyday was fantastic though!

A very big thank you to Anna for taking part. And I hope her experience has given you some confidence about travelling or an idea of where might be good to go. It's certainly made me long for some winter sun. You can read more about Anna's trip as well as her other great blogposts over on her blog ME, myself and I lifeintheslowlanewithme.blogspot.com. 

Also some exciting news I'm currently working on a travelling with a chronic illness article to be featured in a book all about living well with a chronic illness by the amazing lady behind www.pajamadaze.com. Which will also feature an article by Anna. 

Sian x

Strictly on wheels: Strictly Audience Experience from disabilty/ chronic illness perspective

copyright: Sian Wootton
In the queue to get our tickets validated

Today's post is the second on my Strictly audience experience, but today I'm going to talk in more detail about the experience from a disability/ chronic illness point of view. For more of an overview of the experience take a read of my first post Strictly Audience Experience if you have not done so already. To set the scene, as it were for this post I want to refer back to something I said in my post Taking Chances, which was "life is still for living. Each opportunity is a gift. A chance to have something more than a closed off world of drawn curtains, high pain levels and mobility aids. Where all you see in a week is 2 or 3 people and generally that's just to give you some kind of assistance. More than ever lately I have felt the heartache of how small my world has become. How separate I feel from the real world, the world just behind my closed blinds or just downstairs. I spend so much time listening to all that's going on and not being able to be a part of it. Yet my resolve to try and make this life as good as it can possibly be for myself is at the most determined it's ever been." For me applying for Strictly tickets was part of this. I am such a big fan and it always makes me smile. I'd often watch and wish I was there so putting myself in with a chance of being there was an easy decision. To then find out I had won tickets and was one in 4.5 million was very exciting. The excitement actually drained me quite badly but that's ok, getting to be that excited about something is a big deal and quite precious.

 Of course when you need to start thinking about the how to's, things get a little more complicated. Just leaving the house with a disability/ chronic illness can be a big palaver. But with plenty of planning it can all come together. And with experience and common sense you have a good understanding of the precautions you need to take. You just have to hope your health holds up enough for you to actually make it. As soon as we found out we had tickets we looked into hotels to stay the night before the show and after the show to break up the trip a bit and make it more manageable. Especially given we had to travel down from North Wales and needed to be there early the morning of the show to get our tickets validated. Luckily we found the Ibis Borehamwood, which is really close to the studios and so we booked that straight away. I then started to look into trains, however having never used the train with my wheelchair and not really feeling very confident in doing so given the greater margin for things to go wrong we later decided that Mum would drive us down instead. It just seemed so much easier than getting a lift to the train station, getting one train, then another train, hoping assistance was there and they had the ramps (even though we would have prebooked), then finding a taxi that would take my chair. As well as have to struggle with our luggage. And have to book each part of the journey separately rather than purchase one ticket. It's all a bit much. At least with driving we could take our time, stop as much as we needed and know that we could just pack up the car and go. We weren't relying on several other factors that could easily go wrong. It also meant we could pack as much as we wanted and not worry about creasing our Strictly glam outfits haha. Plus the added joy of heated seats, which are ideal for back pain. Going in the car certainly did make a big difference and although I couldn't switch off too much as chief navigator, it was certainly less stressful, which meant I wasn't wasting precious energy that I needed to pull me through the event. As I was going to need every last scrap of it. To learn a bit more about the mechanics of energy and it's role in M.E sufferers and how we try to manage it for activity/ events take a read of my post Let me put this in a way you might understand.

 A few days before I did start to panic because I caught a cold that left me feeling quite rotten. A cold on its own might not be a lot but a cold on top of a chronic illness can be very draining and make you much worse. I was also miserable that I might have to miss out. Cue lots of hot blackcurrant, steam, vicks, olbas oil and vitamin C and luckily it held off enough to let me go. It was funny though because as soon as we got back in our hotel room I was coughing and hoarse again. I do accredit some of the hoarseness to cheering though of course. Thank you to the cold gods or the Strictly gods, whichever of you it was.

So moving on to the more interesting bits. I did think about just sending my Mum to get the tickets validated in the morning so that I could stay in the warm and again make sure I saved up energy. Especially after the what ended up as a 6 hour drive and not a great deal of sleep. However I wanted to get the full experience of this opportunity and thankfully I didn't feel too horrific that morning. So I wrapped up in a blanket to help keep my legs warm (I find they get cold very easily with not moving and then that can cause pain) we both joined the queue to get our tickets validated. Luckily the weather was dry and not too cold. If it had been raining or really cold I probably would have stayed at the hotel, not wanting to make myself anymore unwell and potentially not be well enough to make the show. It felt nice to be in company and chat to people that love Strictly just as much as I do. This again is something so small but it can mean a lot when you're used to only close family.

We were told that we needed to come back at 5pm rather than the 3pm it stated on our ticket, which was good as it meant a little longer to rest and recover from the morning  before the show. Cue lots of lying very still. One achievement that could easily have got lost in all the hype was that I managed to take my first stand up shower in about 3 years. Yes it was only 2 minutes, it made me pretty dizzy and my Mum was on stand by but I did it. Things like this might seem small but they are big achievements when you haven't been able to do them in years. All glammed up, including my blinged up wheelchair we arrived back at the studios for 5pm and were told to join the front of the queue so that they could get anyone in chairs or others with reduced mobility into the marquee first and seated at the front near the entrance to the studio. Making it easier for us to have access into the studio later on and not be fighting through the crowd. This was one thing that I was a bit worried about before going, getting through crowds is never easy when you're not at people's eye level. I had visions of struggling to get through the crowd of people but luckily good foresight on their part meant this was avoided. I do love that level of organisation and planning, the stage manager in me was very pleased. Even when I needed to get back to our space in the marquee after going to the toilet (the swankiest disabled loo I have ever been in) the staff helped to clear a path for us. It does get you a few stares or sympathetic looks and can make you feel a bit awkward, however it's much better than having to fight to be heard and seen whilst avoiding laddering anyones tights.

Speaking of the staff I really have to commend them, they made the whole atmosphere of being there even more of a pleasant experience. On a practical level they were really helpful, holding doors open so we didn't have to struggle with the door and ramp. Helping us up and down the ramps, in particular the steep ones and at the end of the time when they had got a bit slippy. And it all seemed very instinctual. We never had to ask for help. Someone always just appeared and helped with a smile on their face. From holding the toilet door open as Mum wheeled me up the ramp to helping us down the slippy ramp at the end of the night. I felt so looked after, but never patronized or made to feel like a problem, as can sometimes be the case. It was nice to feel like a person. Whatever training they have in place regarding persons with restricted mobility it's working.

They were very aware to communicate often and to accomodate the different needs that everyone had. The audience manager sought out those of us in wheelchairs and asked whether or not we could transfer into a normal seat to know where to seat us. She then said that we would be one of the first to enter the studio to get us seated safely and at roughly what time. Other members of staff spoke to those with sticks and other mobility aids about their needs and capabilities to know where best to seat them, ensuring their comfort. And they also made sure any pregnant women had a seat by the doors too. One woman looked in so much pain I was convinced she'd go into labour. What a birth story that would have been. This discussion I believe is important as it shows an understanding that everyone is an individual with different needs. But it's also done in a discreet way too, which I found very respectful. 

 I did find that the music in the marquee was too loud. A lot of people struggled to be heard over it and I know my Mum who wears a hearing aid and another person that I was speaking to that also had a hearing aid found it hard to know what people were saying because of the background noise. I know we were about to go listen to a live band but as I can find noise quite draining I felt very conscious that it could drain me of the energy and concentration that I really needed for the main event.

 



Copyright: Sian Wootton
with my validated tickets, resting before the show



When they bought us into the studio I had such a wave of nostalgia. Seeing the props and the white gaffa tape marking the walkways reminded me so much of my stage management days, pre illness. From the marks on the dance floor to the extensive lighting rig and fly tower it all made me gulp in reminiscence. It bought back how much I miss working and all that I'm missing out on. But rather than get upset I decided to use that feeling to make me even more determined and dare to dream again that things one day might be different. As well as simply getting to sit in such a great seat getting to revel in the behind the scenes of one of my favourite shows and feeling very lucky that I got the chance to experience that. That in itself is beyond compare. Nevermind getting that opportunity when you face so much hardship.

We were given plenty of time and not rushed to transfer into our seats and my Mum showed them how to collapse my wheelchair properly. I'm not sure if they needed to do so or not because I'm not sure where they stored our wheelchairs after we took our seats. But they were respectful that they were a piece of valuable equipment and treated them as such. Once we were seated one of the members of staff also let us know where he'd be should we need anything or need to leave the studio.

The one other thing I found difficult was that the chair was uncomfortable. I really should have thought on and kept my cushion from my wheelchair but I wasn't really thinking practically at that point. My head was just screaming "Aahhh you're in the Strictly studio." Plus I should have taken my painkillers a bit sooner rather than worry about getting them out of my bag shortly before the show began and I suddenly thought "ouch I'm in a lot of pain" and "doh I've not had my pain killers." Taking my tens machine with me would have been a good idea too. By the end of the show I was in a fair amount of agony, I could barely get out of my seat and back into my wheelchair. But I did have help. I did ask if Pasha could come lift me into my chair but sadly this didn't happen.

 It took a while to get off to sleep that night but this was more from trying to wind down as I just felt so ecstatic. I was high on life. Like how has this just happened to me? This is so very far from my everyday life. I just feel very lucky that my health held up enough to let me do this. Yes it hurt a lot afterwards and I was very exhausted. It took two weeks to fully recover. However it was a happy two weeks spent reminiscing. It made the pain and fatigue much more manageable and worthwhile. I know a lot of people think it's cruel to suffer so much for having fun or trying to do something normal (not that this was normal) but I don't mind too much as I can justify it. It still hasn't sank in that it actually happened. No matter how many times I have rewatched that episode. But I am beyond grateful that it did. I got the chance to make a dream a reality. That's priceless. And no matter what the road ahead has in store I'll always have that. Sorry I'm being so sappy.

Again I want to say a big thank you to everyone that works at BBC shows and tours for helping make the experience even more joyful and stress free. You have a great team that you should feel very proud of. They could easily get overshadowed by the celebs and glitz and glamour but they really do add to the experience and make a big difference. I actually want to go work for them if I ever get this illness under control.

Sian X

Long haul travel tips for Spoonies

Finally, here's my tips on how to cope with long haul travel as a chronically ill or disabled person. Buckle up, ironically this is a long post.

Research

When planning your trip it's important to consider the length of time you want to go for. Be realistic in remembering that the journey will require recovery time, which could be longer than you first imagine and you are unlikely to get to see much of your destination. However of course the whole point of going is to "explore" a new place, so you need to give yourself enough time to do this, whilst also allowing time for rest and recovery. Also think about recovery time if you want to go on any day trips whilst away. 

Also consider whether you can afford to upgrade to better seats with more leg room on the flight. Having more room is certainly an advantage however of course paying for the privledge is not within everyone's means. Ring your airline or visit their website to see where their special assistance seats are, whether they have set seats for each class, or whether they will allow you to choose where you want to sit. This can all depend on your disability or illness too, so discuss this with the special assistance team. All airlines will prevent you from sitting in the exit rows for safety reasons but there may be other extra leg room seats you might be able to reserve, which would be beneficial especially if you're in economy. Choose one that is close to a toilet if needed. 

For more information on the best plane seats visit Seatguru at www.seatguru.com to research good seats for the type of plane you will be travelling on. Perhaps have this open as you speak with the airlines special assistance team.  

When researching destinations be sure to check if you need immunisations to travel to where you wish to go. Consider whether your body will be able to handle such injections.

Check your medication is legal in the country you are going to and seek advice on how to proceed. You don't want to get stopped by customs. You should always carry a prescription with your address on it or medical note anyway, along with your medications in your hand luggage. Also whilst on the flight remember to take your medications as per usual. Keep your watch on the same time as your home country so you can keep an eye out or set alarms on your phone or watch.

 

Visit the airlines website. Make yourself as familar as possible with their special assistance policies. Check the types of meals and snacks that are available onboard, especially if you have allergies or food intolerances. This will help you plan what food to pack in your handluggage or to be bought at the airport. You can check what films and tv shows they will be showing. You can plan what you want to watch or if nothing really takes your fancy then you know to bring plenty of your own entertainment. Whether that be downloading films to a laptop or tablet or bringing a kindle, books and puzzle books. 

Visit the airports website.  I would look up the special assistance policies for each of the airports you will be travelling through, so you can have an idea what to expect. Remember although you book special assistance through your airline they are only responsible for your care on board. Whilst you are at the airport you're in the hands of their special assistance team, so be sure to check both your airline and each airports policies.

 Also whilst you're on the airports website look up what shops and restaurants are available at each airport you will be at. This can help you plan where you will eat or get snacks. Again this is particularly useful if you have food intolerances so you know that you can get food at certain places. This can be really useful if you have a layover as you can plan where to go and how best to utilise your time. Alternatively there is the app gareguru and trip advisor.

If you suffer from food allergies or intolerances and have concerns about managing abroad be sure to take a look at www.celiactravel.com for advice on how to ask for free from foods and printable cards in different languages to explain your intolerances. If you are staying bed and breakfast, half board, full board or all inclusive contact your hotel in advance to enquire what free from foods they provide, or put in a special request for certain items.

 

Consider booking into one of the airport lounges so that you can relax in a quieter less chaotic environment before your flight. This is also a great idea if you have a stopover between flights, so you can have somewhere quiet to go recover and prepare for the next flight. Or if you are travelling alone as you know you can get everything you need in the one space without going far and the airport special assistance team know exactly where you are to collect you. If you are travelling alone and haven't booked into a lounge my friend Hannah recommends trying your luck and asking if they will let you wait in there for some peace and quiet. You never know. If they say no, ask them to take you to a quieter spot and don't be afraid to ask them to get you a drink or something to eat.

Packing and preflight

Getting a lot of good quality sleep before you fly is recommended. Sleep is our bodies way of recovering and also keeping our health in check. If you do sleep on the plane it won't be as deep a sleep with being in a busy surrounding. So get plenty of sleep before a trip as well as trying to sleep on the plane as much as you can.

You will often get a sleep kit from the airline with things like a small pillow, blanket and sleep mask however I recommend taking your own things so that you're extra comfortable. Having your own things that are tried and tested to make you feel safe and cosy especially if you are an anxious flyer is a bonus. Sometimes just the smell of them can evoke calm. A sleep mask can help you block out any light and aid better sleep. Also consider noise cancelling headphones or earplugs to help block out noise. 

I say this is in any of my travel posts but it's so important. Pack the items that you need to feel as comfortable and relaxed as possible in your handluggage. Whatever you use at home to achieve this, bring it. You need all the extras you can when in a new and potentially uncomfortable environment. Anything at all that you use when you want to try feel better.

So pack those favourite fluffy socks or essential oils, as long as they're under 100ml and in a clear bag. If you drink a special tea to help you relax bring some tea bags and just ask for hot water when you're on the plane. Comfort is key! These items will help you during the flight but also throughout your trip. Having items you're familar with and known to help you feel better will help comfort you when you are having a flare.

On that note sadly you can't have a hot water bottle or electric heat pad on a plane. Although you can pack them in your checked luggage, which is what I do. If these are things you rely on and worry you might suffer aches and pains you would usually treat with heat, purchase some heat patches that you apply to the skin. You can buy different types for different areas and they last up to 8 hours.

Comfort is key! Yes I said it again. Choose a travelling outfit that is really comfortable. I'd wear pyjamas but I think that's frowned upon. Although I've seen a few people (older than 3) brave it out. So wear the next best most comfortable thing. Stretchy trousers that don't cut you off at the middle. Remember your stomach and legs swell whilst flying so a forgiving waist band is best. Wear shoes you can easily slip on and off and pack extra socks or slippers to keep your feet warm. A big scarf is often good as it can be doubled up as a blanket or as an extra cushion. Layers are also good as you never know what the temperature on the plane is going to be. Just remember to take them all with you when you land.

Wear flight socks/ compression stockings. This will help reduce any swelling in your legs and help prevent DVT's. They are great if you are not used to sitting for that length of time and if sitting usually causes your legs to ache. Or if you experience blood pooling, poor blood flow in your legs. Put them on before you get on the plane.

Bring snacks- You get food on the plane but this might come at times when you are not really hungry or you just don't like what's on offer, or they don't provide anything suitable for your dietary requirements. Especially bring food with you if you have allergies or observe a certain type of diet. You can pick things up at the airport (again visit the airports website to see what shops are there, so you know you can get snacks there) or if you have room in your handluggage bring things from home. Don't put anything in tin foil though as this will cause trouble going through security. Graze snacks are great as they are in small packets. They now do the slightly bigger ones too. I found some in a WH Smith at the airport last time I went away which was useful. Also look at kids lunch box type snack packs like dried fruit or cereal bars. You could also take some things like porridge or noodles that only need hot water.  Again check security restrictions as to what you can bring through security.

Invest in a water bottle with a filter. Such as the bobble bottle. That way you can make sure you stay hydrated but not have to worry till the next time the drinks trolly comes round. Simply ask the air hostesses to refill and the inbuilt filter will filter away any mankyness of airplane water. Plus you don't have to buy another bottle of water because you've had to chuck one before going through security. Although you will need to make sure it's empty as you go through security. They are also great for using at your destination as that way you can be sure the tap water filtered and less hard, as well as saving money on bottles of water. I would double check though that the tap water where you are going is safe to drink though first.

 Pack a portable phone charger in your handluggage. These are great for if you are using your phone a lot at the airport/ on the plane (on flight mode) as they give you that peace of mind that should you run out of battery you are not stuck without the use of your phone. Or feeling reassured you have enough battery life to use your phone when you land, should you need to contact your transfer or hotel etc. They're also great if you are delayed and stuck at the airport or on a layover (especially if it's a long one). You don't have to worry about finding a power socket in order to charge it. It also doesn't matter then if you are in another country but your plug adaptor is in your checked luggage. 

Stay hydrated. Planes will quickly dehydrate you. Drink as much water as you can before and during a flight to stay hydrated. Avoid alcohol and caffeine as this will dehydrate you even more. I know this can be difficult especially if your nerves affect your bladder but do your best.

Avoid big meals. Before flying and during a flight be aware of what you eat. Eating smaller meals and snacks is best because of the effect of the air pressure on your digestive system. Your body cannot digest food as well when you are at altitude and so a bigger meal will cause even more bloatedness and cause you discomfort. Give your stomach an extra helping hand my choosing more easily digestable foods. This is another way you can help ensure you feel as well as possible after the flight, because let's face it you're going to feel cruddy enough.

At the airport

If you are using your own wheelchair your wheelchair will be stowed in the hold at the gate, usually after you have boarded the plane. If you have any stopovers chances are you won't see your luggage until your destination but it's important to check with your airline what the policy is for medical equipment. I've heard that in some instances your personal wheelchair will be tagged with your final destination and therefore once you land at your layover airport it will be taken with the luggage to your next plane. Meaning they won't reunite you with your personal wheelchair until your final destination and you'll be given one of the airports during the layover. Do seek advise from your airline over what to expect, especially if you have a specialist wheelchair designed especially to fit your personal frame and keep you supported or a power chair.

A lot of airports now have those massage armchairs or some even have masseuses, before you board this may be an option to help get your blood flow going. In particular if you are at a stop over airport and you need to recover from the first flight. Keep the pressure light though. Plan your time- One of the things that I predict I would struggle with flying long haul is what to do for that amount of time. Ok I'm used to hours of doing nothing confined to my room but not spending that amount of time on a plane. Spending an hour on a plane is enough for me in all honesty but the world has some pretty fab places that are more than an hour away.  In my travel interview with Hannah, she said that she likes to make a rough plan of how she is going to use up the time, which also allows her to pace and ensure she gets plenty of rest. Plan to get as much rest or sleep as you can but also use lots of distraction techniques like watching a film or listening to an audio book, especially if you are a nervous flyer.

Coping with jet lag and managing your stay

 Commonly the advice with jet lag is to fight it and to get yourself in line with the time zone as soon as possible. However being a chronically ill person we know that fighting our body is never going to end well. We have to listen to our bodies. Chances are after such a long flight and stresses of airports you are going to feel pretty unwell and will need to go to bed as soon as possible to recover. Let yourself recover properly before trying to adjust to the time zone and increasing your activity. 24hr room service can be quite handy here or having someone that can go out and stock up on food and drink would be useful.

The unknown is always going to be your biggest obstacle and challenge, however if you prepare yourself as much as possible and have lots of coping mechanisms you can feel more comfortable in the knowledge that you're prepared and armed to tackle any challenges.

Lastly my advice is enjoy it! Have fun and experience as much as you can to the best of your abilities. Also be appreciative and thankful that you have this opportunity. Don't forget to give yourself some appreciation too for taking on this challenge and giving yourself new experiences.

I thoroughly recommend you search Pinterest and other blogs for long haul posts to get as much info as possible from experienced long haul travellers.

 

I hope you find this post useful. Please comment with anymore tips if you have any, would love to hear them. I've linked some more posts that are related below. Or for all my posts on my spoonie travel series visit my travel tips page.

 

Sian X

 

Travel interview with Hannah, including long haul tips

Researching a holiday

Planning a holiday

Getting travel insurance

Booking special assistance

 

 

 

 

Travel interview with Hannah (including long haul)



copyright: Hannah Wallace



 

Today's post is a spoonie travel interview with my darling friend Hannah, who was a very lucky lady recently and travelled to Mauritius. How divine?! As this was a long haul trip, (as well as drawing from some of her other long haul trips) I added in some more specific questions relating to how best to cope with travelling long haul as a chronically ill person. A few people have also asked for this and fingers crossed this is something I hope to do in future. The thought of it does fill me with apprehension, so I personally will be taking notes.

 

Illness/ disability:
Ehlers danlos syndrome, POTs, Fibromyalgia, Bursitis in my hips due to EDS, ME and a number of allergies

 

Destination:
Mauritius

 

Who did you travel with?
Partner

 

What airline did you use?
Air Mauritius

 

First of all, how was your holiday?

 

It was amazing, beautiful and relaxing

 

What was your biggest worry before travelling? And how did you overcome it?

 

Obviously getting more ill on holiday is always a concern. For me things like dislocations, pain, stomach issues and fainting are a constant worry but I try to think I have good medical insurance and I'm with someone that will really look after me. Plus all these things could happen at home too. I've been unwell a long number of years but I remind myself that I'm lucky I'm able to do this with these illnesses. I try and look for the positives. I think being organised is the key, having plenty of help and plan, plan, plan. I think it's natural to worry about things but if I choose to embrace this worry I'm in control. Also I'm very aware how stress affects the body so I try and be mindful about that.

 

Did you notice any changes in your health whilst you were away? Good or bad? Any new symptoms?

 

I had body temperature issues and struggled regulating it. This always happens when I travel as POTs can be iffy in the heat but I'm very mindful of this, so I work with it daily. My joints flare up if it's too hot as it can make me more stretchy, due to the defective collagen in EDS sufferers. Over all my health was all about the same as it is at home, besides bite reactions, a whole mouthful of ulcers (which is very normal for me) and a few nasty headaches. I tried to generally plan well so if I did more activity I made sure recovery was planned after. I realise it sounds not great but it was ok as it was not much more than what I experience at home.

 

How was Mauritius as a destination in relation to your illness/ disability? ( Accessability, flat, close to restaurants etc, quiet)

 

The resort was great. We stayed at the Westin Turtle Bay hotel and I was very impressed overall by the Westin group, especially concerning dietary requirements they were really good. The food and restaurants were over all really good.  It was very accessible as the hotel had been rebuilt due to a recent fire. I would recommend the place. The hotel was quiet too and plenty of space. One day they told us there was going to be some building work near our room and so they moved us to a quieter area.

 

How did you find attitudes/ perceptions towards you by other travellers and from the locals?

 

Other travellers were really nice. Obviously people wonder what's wrong, especially as sometimes they see you walking small amounts etc and others you are in a wheelchair. I think at the end of the day it's natural curiosity. I guess it's how conscious you feel about that. For me personally I'm not too worried. I'm just so appreciative I'm having these experiences that I think screw it. Obviously it's not always been easy to have this attitude, I've lived with this 15 years and learned you have to choose to adjust or it'll torment you. There's always going to be a few twats in life and I have adopted a no twat policy in my life. And to be honest if someone was rude I'd say something back. You do get nosey people but it's the same at home. The locals there were very nice and kind.

 

Do you think that despite all the extra 'hassles' of travelling as a chronically ill/ disabled person it is still worth it?

 

I think it's a personal thing to decide. Obviously a big factor is how unwell you are how well your illness is managed. Like any risk assessment you have to weigh it up. For me it's worth it. But it's been trial and error over the years. It's about being realistic with it all and prepared. Life is full of cause and effect, it's finding the balance within this. Most important is choosing to go with people you trust and knowing you'll be well supported and looked after. If you don't have this it wouldn't be a good idea.

 

From your experience(s) what pieces of advice would you pass on to other spoonie/ disabled travellers/ would be travellers?

 

Good planing all the way is the key. As well as maintaining your routine while away is a good idea. It sounds very controlled but then this allows for flexibility with things. Be organised take the important things from home that keep you comfortable. Be researched on where you're staying even down to the small details, especially with diet stuff. Try and keep any dietary requirements as you do at home. Tummies abroad are definitely more prone to things so by not upsetting this to much you help yourself. Compression socks are essential for flying even if it's only an hour. Make sure they are put on at least an hour or two before the flight and leave them on for an hour after landing. Keep hydrated. Don't wait till your gasping for a drink and have it in a routine as our bodies respond to rhythms. Re-hydration pills are a very good thing to use regulary on holiday especially because in the heat our bodies can react and are extra sensitive to heat. If you can't tolerate booze don't do it I know it's boring but it's not worth it. If you can do it cause I bloody would :))). Keep up your salt levels too, to help muscle cramping and restore anything lost through needing extra hydration or sweating. This all sounds boring but have fun in the ways you can because these moments are so precious. Best advice ever is don't worry what others think end of full stop. ( not the easiest one ) but it will empower you and free you once you embrace this.

 

What items would you not travel without?

 

Aside from medication I wouldn't travel without my supplements I've found things which help and I keep this up while away. Salt is a must for me as I have low blood volume, so I need to put it on my food and take it off my hand regularly to help stop me fainting. I use Redmonds Real Salt, the sea salt. Re-hydration pills. Noise reducing headphones. A super soft neck pillow. My own blanket for the plane. And super warm socks. My silk pillow case and silk dressing gown because these make me feel good. My yantra mat. My iPod and kindle. Pen and notebook. Ghds. Lipstick. A good face cream. A Mala, which I wear. A few crystals, cause I'm crazy. And Miffy of course ;)

 

What are your favourite holiday beauty products?

 

My fave beauty products are not the most luxury but are necessary. I suffer with prickly heat so the Rona Ross prickly heat wash and lotion and skin repair lotion work great, they aren't super expensive and I never travel without them. Other essentials are: Aloe Vera gel. Hydrocortisone (you never know). D pantenol which is great for bites and burns. Marula oil, I love this stuff and use a few drops under my moisturiser. A good cleanser is essential for getting the day off, I tend to take Liz Earle on holiday as I find it the best staple it removes every thing properly. I use Liz Earle face mask that's hydrating too great for after being in the sun or I love aromatherapy associates rose one they work !! Lip balm. Carmex. Good hair protection, this time I used Aveda spray.

 

If you were to go on holiday again what would you do differently?

I don't think I'd do anything differently as I'm fairly well practised. I think I just need to keep being mindful of my limits and be cool with it.

 

How are you after your holiday?

 

Well I didn't expect to feel great after the flight but that was as expected. I did get a minor ear infection which has been a pain but I've made sure I've really rested up after.

 

Did you have to make any special arrangements for transfer from the airport to your hotel because you were in a wheelchair? Or did you/ have you ever encountered any problems about this?

 

I always get a private transfer from the airport but I know people who don't and they have found it ok and people mostly helpful.



Copyright: Hannah Wallace

 

What do you pack in your hand luggage to help you survive a long haul flight?

 

Salt (as explained above). I get coconut water at the airport from Pret or Boots one to have at beginning of the flight and one for just before landing as it's isotonic so it's great for re-hydrating. And I buy loads of water after security so I have enough for the journey. Dark chocolate. Some form of gluten free energy bar and some crackers of sorts. A warm blanket I fold it up and sit on till I need it. Thin gloves. Neck pillow. Warm socks. Lip balm Hydration face spray. Moisturiser. Small hair brush Kindle. iPod. Noise reducing headphones. Mala beads of course ever the yogi. My own Silk eye mask. A bottle of aromatherapy associate breathe oil to sniff and some lavender oil. This time I took small post cards to colour in. I layer clothes so usually take an extra cardi or jumper and pashmina. My own water bottle. Wipes for hands or face. Tissues. Sunglasses for reducing light and headaches. Walking stick. And finally spare pants!

 

What is one thing you should know about flying long haul that is a great tip but a lot of people might not think about before hand?

 

Wear flight socks to help your legs. Also find out if the plane is full. If it's not you may be able to get a few seats to lie across which really helps when flying economy. Don't drink totally cold water, drink it at room temperature or warm it shocks the stomach less If you drink herbal tea take a few bags they'll happily give you hot water.

 

How do you cope for such a long time on a plane?

 

If you haven't flown long haul before becoming ill it's probably not the best time to try it unless you need to for some reason or feel you can cope with this. I cope by making a schedule of sorts. You know food is served fairly soon when you take off and another meal towards the end. Also lights will be dimmed during night hours at some after the meal service for sleep. So I try to make a plan such as meal service, movie, drink, nap, drink, meditation, drink, nap, listen to music, sleep relaxation app. Sometimes I watch two movies but I try to sleep. I find with pain etc it's often harder to sleep and it's frustrating when I see others snoozing away. So if you're lucky sleep as much as you can. But if I'm struggling I try and do it in blocks of 40 mins or an hour and half as these are sleep cycles and you tend to not interrupt sleep cycles. It's never going to be a bed of roses but I highly recommend trying to plan it. Also be aware in sleep times they tend to heat the plane up more so you may suddenly feel warmer, that's why layering your clothes is great. Keep hydrated, it's essential even if you need the bathroom more often. If people around you are asleep you can call a steward to help and take you. And you will always be seated near a toilet and if you're not ask. Making sure you relax properly will also help, which is why all these new relaxation apps they have are great. Noise reducing headphones are definitely a help too. Making a plan really does help because it helps break up the journey too. Move your ankles and feet too, this helps blood flow. If you're ill and travelling alcohol is not a good idea. Wear comfortable clothes you can still look good and comfy but it really makes all the difference. I used to worry saying exactly what I needed from the airline etc but I've learnt being clear with them is good. Chat to the special assistance team of your airline before you fly to arrange what you need and discuss what is available.

 

How do you cope with layovers for connecting flights?

 

Find a quiet spot to relax and get some rest. Having access to an aiport lounge can be a big help. If you don't have access to a lounge then head phones that reduce noise and an eye mask can help you get some quiet. Find a floor or row of chairs where you can stretch out. This can be helpful, not the best but if needs must. Assuming you have people with you to help watch you and your bags. If you're travelling alone it could be worth putting it out there and asking if they could put you in a lounge as special assistance at the airport will help you from the plane and later on, onto the next plane. Again keep hydrated.

 

 

How do you help manage jet lag?

 

I think depending how well the flight goes for you it definitely affects jet lag. But I use extra melatonin to help me. Magnesium oil is great if I can't get a bath. Rest more after your flight and go with the flow, listening to your body. Also when I arrive somewhere I lie on the floor with my legs against a wall well supported and padded this helps blood flow. I do this daily anyway but it's a helpful inversion. Make sure you get up slowly! If I arrive somewhere and they have a bath I will have one before bed. Once I'm back home I will always have a magnesium bath with flakes. Trying to keep to your normal times definitely helps too, although not always easy.

 

What do you find are the biggest challenges flying long haul as a chronically ill person?

 

I think the biggest challenge is coping with pain if it flares up, that's never easy. Being sat for that long with your legs low is a bummer too. That's why even if I'm shattered or painy I like toilet breaks as I know it's moving blood flow. It's the unknown that can be our biggest worry but like my mum always this is the risk you take. I think the time factor is never easy as it's a long time, we tend to do much shorter things so it's demanding, which is why you need to take extra care.

 

In your opinion is it worth paying extra for an upgrade to better seats?

 

It's definitely worth paying for the upgrade if you are able to. Having your legs elevated and more space is a very good thing, you do notice it makes a difference. And if you're not able to my tip is checking if the plane is full or not and asking if you could move to an empty row, so you could stretch along a few seats. I think making sure you meet your personal needs is most important.

 

A big thank you to Hannah for taking the time to do this interview and sharing with us a bit more about how she coped on holiday. It's much appreciated Han! Also a big thank you on the insights into how to cope on a long haul flight. I'm hoping they might come in handy in the future. Hopefully soon I'll have a tips post on more things to consider if you're planning a long haul trip. If you have any specific concerns about travelling long haul that you would like to see mentioned then please leave a comment below and I will do my best to answer them in the tips blogspost. Thanks again Han!

 

Sian

All the emotions: Facing reality on holiday

 In my post about my trip to Brussels, read here, I said that it had re-awakened that wanderlust part of me and that I was excited to try new places. This also coincided with us not being able to go to our usual holiday destination this year. And so, we decided to try a new place this year. I did my fair share of research and found a flight and hotel that seemed ideal. And so our Zante adventure began.




Copyright: Sian Wootton

 

Last week my instagram portrayed travel and adventure, pretty dresses and bikini weather. A picture can paint a thousand words but sometimes not show the reality. Many people who have social media accounts as well as a chronic illness will relate with the statement that their posts are a highlight reel, predominantly sharing the good moments, just a tiny glimpse into our day, not the 99.9% unphotographable reality; and this is certainly the way in which I feel about how I documented by holiday. In all honesty I found it hard at times to face up to the realities that being on holiday as a chronically ill person in a wheelchair presented. Especially being in a wholly new place, where we knew no one. Sadly as much as I want it to M.E doesn't get stopped at border control, it is always going to be your travel companion. Of course I knew this, I wasn't expecting miracles. However when you go somewhere new when you're chronically ill or have a disability it's as though you are seeing it through blinkers, you can only see and do so much and there is so much you will miss. Sometimes it's as though you could be anywhere, just with much better weather.

 

I was actually quite suprised by how down I felt at times, even full on ugly crying. No this is not a recurrence of my depression! I just needed to let out my feelings and then eat them with ice cream. Being chronically ill is tough physically and emotionally and you can't always be positive about it even though you try your very best to be and others may be amazed at how you cope. But sometimes you don't want to hear "you cope with this so well" "you're so brave" "you're an inspiration". Because all I want is to be normal. Even if I can't have the life I had before. I want what is normal or mundane for most people. I want a steady job and make my own money. 9-5. Works drinks on a friday. Weekends of socialising, fun and exploring. I want to be able to make my own dinners. Do my own laundry. To be able to be able to pop to the shops when I fancy some cake or chocolate. I want relationships where I'm not going to feel like I'm a burden. Or they need to be my carer. That I feel I have much more to offer.

I just long to feel my age. To not be a burden. To be less lonely. I hate being so stuck. So helpless. So unable to even look after myself. Of not having control of my wheelchair and being pushed all over the place. Constantly worried about getting bruised toes. One seconds lack of concentration and you're into a wall. Used as a trolley. The bag minder. Made to feel you're a nuisance or in the way. Or that others are a nuisance being in the way. That you deserve so much more attention because you're in a chair. To see people pull others out the way. You never quite get to what you want to look at. You're in the way at the breakfast buffet or the salad bar. Not that you can see what's on offer in your chair. You can't go anywhere on your own. Or when you want. Not even to the loo when you're out. You can't just stand up and take yourself off. When you need to get there quick is the worst. Or rarely be able to use the stairs on your own.




I'm just so tired of so many no's. I am not a no person and I try my best not to be with this illness. I try to do what I can but still there are so many limitations. No this place is not wheelchair accessible. No you can't get along that path as someone has put signs up on the pavement. No you can't eat most of what's on the menu. No you can't go out today as you went out yesterday or the day before. No you can't just pop downstairs and get what you want. No you can't be left on your own for more than a couple of hours. No no no.

Sometimes I think I must look and sound like such a diva. Push me here. Be careful there's a wall right there. Turn that music down. I need this. I want that. This is not good enough for my needs. Especially when I need to raise my voice as both my parents are hard of hearing. I must look like a right stroppy madam. Within an hour of me being at the hotel they had already gone to buy me a chair so that I would be able to shower. Ok this is necessary and I was expecting this to be there with an accessible room and fair play to them for helping me out. But all these extra needs are frustrating. So many things literally, and I mean literally in the correct form, get on your nerves and make you feel shockingly poorly.



source: Instagram

 

This is not something you get used to and I don't want to get used to it. And I don't think my family are used to it either. The days when you need help just to sit up, to pull your pants up or to be fed. Even the good days where you can get out in your chair. You're not independant any longer. Others get a say. And you need them just to get through the day. You're no longer your age. Some days I don't feel like a person. I'm an illness, a disability. Sometimes people won't address me when they're speaking. A conversation will literally go over my head. Or when people talk about me it's not long before my illness will come up. Probably even within a few sentences. I'm the one in the wheelchair. Like that is my identity.  And some days I feel that even I believe that's all I am now. That I'm boring, and don't have anything interesting to talk about. Non of my former achievements seem to matter now or they are subsequent. The things I spent years and a lot of effort achieving. All gone to dust, it often seems. I hate that due to this illness I'm percieved in a way that couldn't be further from all that I have worked for and all that I am proud to be. And as time progresses and I continue to have this illness the harder it becomes to differentiate between your true self, all you want to be and how this illness forces you to be. 

But back to last week. Can I say I had a good time? I want to. I did things. Achieved a lot. More than I do in a week back here. I'm able to "say great job, you did so well." There is plenty that I will be putting in my memory jar and scrapbook. However each one was riddled with so many questions and confrontations. How arw we going to get down the kerb? How are we going to get up the kerb? Who's going to hold onto Sian while the other gets the chair up/down the kerb/step? Is there a ramp? Can you even get up the ramp? Is the ramp blocked? Where can we put the wheelchair out of the way? Look another step. Oh crap we've taken out the sweet stand. Overall I've done these things and still inside just felt blocked off but at the same time unable to shut off from constantly being reminded you're disabled. Chronically ill. Some of the things, especially the last night of the holiday I feel I did just to try escape my own head. You get like that every now and again. You hope a change of setting will let you stop thinking as much, stop crying in all honesty. I can't blame it on the place or the people. It's just been a tough week. I'm sure it might not have mattered where I was I may still have felt the same. Just utterly fed up at how cruel life has been. Lonely. Heart broken for the life that once was and person that at times seems to have been left behind. How this trip could have been if I had the health?

I don't want to sound ungrateful in anyway. I'm happy that I had the idea to go there. That I wanted to try other places. That I have great parents who care for me in every way, and without whom these opportunities just wouldn't happen. After having a really good cry and letting out my feelings by writing them down I did feel better. So I don't wish to place the blame on the place or the people at all. Nor do I wish to put anyone off going away. Because if it's something you want and feel you can do, go for it. I just wanted to talk honestly about my experience this time around. To say it wasn't all picture perfect. How can it be when you are chronically ill?

As with anything in life now I measure it through the amount of smiles I have and the consequent laughter. And while this has been a lovely trip and I have managed a fair bit, of which I am very grateful, I've not smiled as much. It's hard to admit that because you just feel guilty. Like how dare you not have a good time! But when what you can't do and all these obstacles are constantly in your face it's hard to put on a genuine smile. To keep positive. A holiday is supposed to be about having a break, and unfortunately we don't really get much of one. However there are positive things that I have taken away from this trip like my wish to travel more has been accomplished and I have done some nice things that will be documented in my scrapbook and memory jar. Even picking myself up after full on crying and being so morose, I will take that as an achievement. I did have to buy a hand bag just to be sure I excercised all my pick me up methods though.

Apologies for moaning. You know I'm generally quite positive but it can be difficult to smile all the time when everything is in your face. Thanks for listening.

Sian X

Coping whilst on holiday



copyright: Sian Wootton



 I realised the other day that so far my travel tips have covered everything from researching your trip to getting there, but I've not actually covered the actual holiday itself. And that's the best bit isn't it! What all these tips and advise have been leading to. So finally today I'll cover some tips for the actual holiday itself.

So with this in mind the first tip is put all that research and planning to good use. You know you have put in a lot of effort to get there and as a consequence you have bought everything you could possibly need with you to make sure you're comfortable. Remember to include extra help for noise and light sensitivities and relaxation methods and put them to good use.

Be aware that the journey will take a lot out of you. Let yourself recover and rest properly. Also make sure you rest well to prepare for any travelling. Save those spoons up, you'll need them.

Keep to a routine as much as possible. Especially in terms of bed times etc. The closer to your regular routine the better. Pushing yourself too much will potentially spoil your holiday.

Don't put any extra pressure on yourself to do too much or push yourself beyond your capabilities of that day. Nor respond to any extra pressure from others. Take it all at your own pace. Chances are you came away to enjoy some sunshine and relax so be sure to prioritize them alongside your health.

Keep taking your tablets at the right times. Be organized with them. Keep an alarm system if need be. On the journey to and from and on any trips out make sure you have them all to hand and in doses.

Be sure to still take breaks as you would at home. Sometimes this may mean a full day in bed. Even if you are just lying on a sunbed relaxing, still make sure you take a proper rest. Listen to your body. Taking these breaks will help you make the most of the experience rather than pushing too much and winding up in a collapsed heap.

Be clear with  the people that you are travelling with what you feel comfortable doing and how that affects them. I know a lot of people worry that they are stopping others from enjoying their holiday to the fullest because they need to look after you but remember they already knew the restrictions of your illness and if they didn't chances are you've not chosen them to come away with you in the first place. However it can be best before going to just be clear on how this holiday might be very quiet for all involved and that anything beyond moving from your hotel will be a bonus. Let them know that it's ok if they want to go out and leave you behind, if of course you are ok with that but hearing you reassure them that you will cope ok on your own for a few hours may help them to not feel guilty in leaving you behind. Just be very honest and candid, tell them that what you say is what you mean and not you trying to put a brave face on things. Say that if you want them to stay you will say so and likewise if you don't. And the same goes for if you want to get out.

copyright: Sian Wootton

Going in the pool or sea, get yourself a pool noodle (which you can see in the photo above.) You can get the benefit of being immersed in the water to cool you down as well as having an effect on your muscles but you don't have to kick your legs etc. Plus if you wrap it around the metal pool steps you can use it as leverage to pull yourself up.

Don't worry about getting a tan. This shouldn't be a priority. Do your best not to burn. You don't need to feel extra poorly. Enjoy the heat but be responsible. If you don't get a tan it doesn't mean that you didn't have a good time. Putting on sunscreen  might upset your nerves a bit but sunburn will cause you a whole heap more bother. If you suffer from fibromyalgia and have particularly sensitive nerves maybe opt for a once a day option, but always choose a high spf. 

Stick to your dietary requirements as much as possible. I'm talking food intolerance's etc here, not whether you should or shouldn't enjoy that yummy dessert, come on you're on holiday. Being in a foreign country you may find it hard to find certain free from foods, if this is a big part of your diet consider taking a few snack items with you. The world is becoming much more savvy to food intolerance's and free from food can be found in more and more places. A great website I found whilst researching in Trip Advisor http://www.celiactravel.com/ has printable explanation cards for use in restaurants and cafes, explaining your food intolerance's in the native language of where you are going. Also be aware of the extra sensitivities holidays can have on your stomach and take care of it. Pack medication to help your stomach should it throw a wobbly, such as immodium, antacids and rehydration sachets or tablets.



even in 40 degree heat my heatpad is practically attached to me
copyright: Sian Wootton

Stay hydrated. This is always important but even more so in the heat. Being dehydrated will make you feel more ill. Also if you feel the heat is causing your muscles to ache or niggle more using re-hydration tablets of some kind of sports drink like gatorade can help restore electrolytes and minerals and help relieve muscle pain.

Stay cool. Many of us have trouble regulating our temperatures and being out in the sun can exacerbate this, the lovely Jo from the blog purlbeadsjo has wrote a great post on ways to help you regulate your temperature, be sure to give it a read here for some great tips.

Be prepared that things won't always go to plan. Days where you can't do as you wished. Etc etc. We are kind of used to that though, aren't we? Don't let it take up to much room in your head. Breathe. And go with it. Let yourself recover. 

Refunds and travel insurance. In case things go really wrong it's good to be fully covered. When booking your hotel opt for the refundable up until the day option just in case. It may be slightly dearer but it's good to have in place. Also make sure you have travel insurance and be sure to be honest in declaring your health conditions in advance. You can do this online. You need to complete a declaration which asks about whether you are affected daily by your illness and whether you have been admitted to hospital in the past 6 months. Unless you are a greater risk of needing medical treatment whilst away or are putting yourself at risk then chances are you will not need to pay more. I have a separate post on travel insurance here.

As I mentioned in my city break tips, (which you can find here) find ways to enjoy the place you have gone to on a smaller scale. Enjoy some local food. The different produce in the supermarkets. The sound of foreign accents. The different smells. The weather. The air. The things that let you know you're in a different place. 

Dress up- If you are able to, of course. Enjoy wearing things that you wouldn't get a chance to at home. Give your confidence a boost and make yourself look and feel fabulous. I like to opt for dresses, as they are easy to put on, instantly give you a different look and because I don't get to wear them much at home. I love a maxi dress for effortless glam.

Most importantly, relax, have fun and enjoy. Be grateful that you have been able to make it there and experience something new and give yourself a pat on the back for trying. You did it!

I'll add these tips onto the spoonie travel tips page on this blog too (you can find it on the right of the homepage or on this link) so that you can see all the tips and advise I have put together in the one place. From researching to now including enjoying the holiday. I'll also put the city break tips on there. As well as links to all the travel interviews with other spoonies. There are more travel interviews coming soon too from some lucky ladies that have been on holiday recently. 

Sian X